Blood Clotting Disorders - anyone have experience?

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Blood Clotting Disorders - anyone have experience?

Postby essiejames23 » Tue Jan 20, 2015 4:18 pm

Long post, but please read!

Hi Ladies!!! I haven't been on in a few months after unsuccessful ttc for 6 months :) Was looking for a forum just like this - perfect!!!

Two years ago I survived a life-threatening embolism. I immediately thought if I live, please let me have a baby. Well, now i found I have multiple clotting disorders and will be on coumadin for life. I have prothrombin mutations and Lupus Anticoagulant with questioned Antiphospholipid Syndrome.

My doctors are pushing me to get healthy and have children sooner than later if I ever plan on having them. While this is not ideal, I am determined to have children so need to find a viable option. I am a sophomore at university right now (hubby also goes full time and works full time - he will be 29 this year), working towards my masters in occupational therapy.

The doctors say the healthiest and safest time for high riskers is to get pregnant by 25 - that is next year so it raises TONS of questions and concerns i am hoping someone can take the time to reach out to me. :happydance: The plan is once i get a BFP, see oncologist and be switched to lovenox/heparin and baby aspirin and see high risk fertility specialist biweekly.

If I were to wait until I am finished with school, I'll be 30 when we start ttc!! The best age (according to the doctor) and safest would be early next year right after I get my associates in science ( I will be 25 then ). Now, I can choose to TTC while continuing on to my bachelors, assuming I don't get pregnant right away (we ttc for 6 months last year with no luck). Then I can either hope baby not born until senior year or hope that school has deferment option and lets me take a year off.

Unfortunately, surrogacy, egg freezing, or IVF are not options as they all require hormone injections which can cause a repeat clot to happen. Then we need to consider if pregnancy is even safe for me - they said with proper monitoring I will be okay, but will still be high risk. I need to talk to more moms with clotting disorders!

Does anyone else have experience with pregnancy with clotting disorders or on lovenox? This is so scary and overwhelming - I have no one to talk to!

So that's me in a big nutshell - I am really hoping for some kind words of wisdom out there right about now! I just feel so lost <3 Big hugs and baby dust!!! :hugs: :kiss:
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Re: Blood Clotting Disorders - anyone have experience?

Postby pumpkinseed » Thu Jan 22, 2015 9:52 am

Sorry to hear about all of your troubles. I am not sure if I have blood clotting issues, but my doc is looking into it and I get results in two weeks. From what I've read levonex and heparin can be helpful.

What kind of doctor are you seeing? Where are you located?
Me: 37 / DH: 43 / G-free / Autoimmune thyroid disease (nature-throid)
Lovenox, metanx, baby aspirin, prometrium, vitamin d3, prenatal, progesterone
MMC: 01-14-15
CP: 4-12-15
MMC: 7-13-15 (d&c, heartbeat was seen but gone at 8 weeks, 2 days)
TTC ON HOLD WHILE I AWAIT RESULTS, HOPING FOR RAINBOW BABY
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Re: Blood Clotting Disorders - anyone have experience?

Postby essiejames23 » Thu Jan 22, 2015 10:55 am

HI! I am on the east cost, I am seeing a hematologist/oncologist and high risk obstetrician as soon as I get BFP. In meantime I am waiting for fertility specialist and genetic counseling appt. :)
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