TTC After Trisomy 13

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TTC After Trisomy 13

Postby mrsm44 » Sat Dec 14, 2013 10:21 pm

I am just coming back from a loss...I was 21 weeks pregnant, and had a Trisomy 13 diagnosis. We are not yet actually TTC, but I wanted to see whether there are other mothers to be that conceived after the same diagnosis. If so, please feel free to post here and we can be a support system for each other!
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Re: TTC After Trisomy 13

Postby B Michaelson » Mon Dec 16, 2013 8:58 pm

I have not dealt with a Trisomy dx but I just wanted to say I am so very sorry for your loss.

Any loss is devastating but I cannot imagine losing a baby that far along.

:hugs:
Me - 36
Hashimotos, JHS/EDS, ANA negative, 1 Fallopian tube
DH - 41
TTC #1 Aug 2012 - May 2014
DS - Born Jan 2015
TTC #2 since Aug 2016
May 2017 :bfp:

:angel: Our Angels :angel:
2004 - 7.5 weeks
Oct 2013 - 6w6d ruptured ectopic
Jan 2014 - Chemical

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Re: TTC After Trisomy 13

Postby littlemissbroody27 » Tue Dec 17, 2013 8:51 am

I haven't dealt with a Trisomy diagnosis, but I too lost my baby late on at 19+6 back in August - cause unknown

Just wanted to say i'm so sorry for your loss and you are not alone

:hugs:
Me (Rachna) - 33
DH - 45
DS - 3

TTC#2 since Jan 2013
:angel2: 29 Aug 2013 (19w5d) I love you my beautiful baby boy :cry:
:angel2: 6 Jan 2014 (approx 5w)
:angel2: 14 Apr 2014 (8 weeks)
:bfp: 23rd May 2014
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Re: TTC After Trisomy 13

Postby Asheo » Tue Dec 17, 2013 9:30 am

I am so sorry to see you here. :(
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Re: TTC After Trisomy 13

Postby mrsm44 » Tue Dec 17, 2013 12:41 pm

Any loss is devastating, of course. I may even argue that a loss with an unknown cause is even more difficult. Are you ladies back to trying? It's only been a week since we lost our little boy...and I am finding myself wanting to try again right away. Obviously, no other baby will ever replace our son, but I can't help wondering whether the great news of another pregnancy would help heal and ease our pain. Thankfully, the genetic counselor did more testing, and determined that our son's Trisomy 13 was caused by a random occurrence, that neither of us were a 'carrier'. This means there is only a 1% chance of this happening again.
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Re: TTC After Trisomy 13

Postby Asheo » Tue Dec 17, 2013 6:34 pm

We tried for the first time this month, I'm technically not suppose to try until November 2014 but decided to go against my doctor's recommendation... I'll be testing on Christmas morning.
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Re: TTC After Trisomy 13

Postby B Michaelson » Tue Dec 17, 2013 6:46 pm

We had to take a month off so I could heal from surgery. I had my 6 week post-op follow up Dec and got the ok to try again. I actually O'd the next day, so our timing wasn't great.

It is a relief to know you are not carriers. I have read ectopics are 1-2% of pregnancies also but the chances of another increase with each one. They took my tube too so I am only at a 5% risk of another as opposed to 10 or 15% had my tube stayed.

I found waiting to be hard. The first while after surgery was really difficult. It was a strange feeling and I am still not really sure I greived as much as I did put it out of mind. I think the hardest part about not knowing why it happened is I often blame myself. That is not helpful at all lol, but I feel like my body failed us and it was likely my actions that could have put us there. But these things can't be changed once they happen so it doesn't do me any good to dwell.

Conceiving another child never replaces the lost one but I aree with you that it would bring a feeling of hope. I think it could also bring a lot of fear but with the bad comes the good :)
Me - 36
Hashimotos, JHS/EDS, ANA negative, 1 Fallopian tube
DH - 41
TTC #1 Aug 2012 - May 2014
DS - Born Jan 2015
TTC #2 since Aug 2016
May 2017 :bfp:

:angel: Our Angels :angel:
2004 - 7.5 weeks
Oct 2013 - 6w6d ruptured ectopic
Jan 2014 - Chemical

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Re: TTC After Trisomy 13

Postby littlemissbroody27 » Wed Dec 18, 2013 1:49 am

Yes we are trying again - this is the first cycle of TTC - the reason we waited was to get all the results of testing on me and the post mortem on the baby. I wanted to try right away - but DH wanted to wait for all the results to be back.

I'll be testing in NYE and it is hard but at the moment the hope of being pregnant again is the only thing getting me through this Christmas period, and the hope that i'll be pregnant by the time my angel's due date comes round on 18th Jan.

Another baby will never replace my Angel but I feel that it will definitely help me move on - even though i'll be filled with fear throughout the whole pregnancy until i'm holding my little rainbow in my arms

x x
Me (Rachna) - 33
DH - 45
DS - 3

TTC#2 since Jan 2013
:angel2: 29 Aug 2013 (19w5d) I love you my beautiful baby boy :cry:
:angel2: 6 Jan 2014 (approx 5w)
:angel2: 14 Apr 2014 (8 weeks)
:bfp: 23rd May 2014
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Re: TTC After Trisomy 13

Postby mrsm44 » Wed Dec 18, 2013 1:45 pm

I wish you all good luck in your trying this cycle! We've decided just to see what happens...I was given the option of getting birth control, but I don't think DH wanted me back on it, especially since it took a few cycles for my body to get used to being off the pill in the first place. He says that he doesn't want to prevent pregnancy, but like the first time, not actively 'try' (tracking my cycle, etc). If it happens, it happens. Of course, just like you ladies, I am going to be terrified until we can confirm that the next pregnancy doesn't have Trisomy 13, or another chromosomal issue. The genetic counselor did mention that there is a new test (only 2 years old) that can detect Trisomy 21, 18 and 13 at only 10 weeks pregnant. They take a sample of the mother's blood (because the placenta passes some of the baby's blood into the mother's blood stream), and test it for any abnormalities. I am still afraid...even at ten weeks, it would be devastating to have another loss, or have to make another decision whether or not to continue the pregnancy. I honestly don't know if I could handle another round of this. Today has been a hard day, dealing with my loss, I've been crying pretty much all day.
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Re: TTC After Trisomy 13

Postby B Michaelson » Wed Dec 18, 2013 6:40 pm

:hugs:
Me - 36
Hashimotos, JHS/EDS, ANA negative, 1 Fallopian tube
DH - 41
TTC #1 Aug 2012 - May 2014
DS - Born Jan 2015
TTC #2 since Aug 2016
May 2017 :bfp:

:angel: Our Angels :angel:
2004 - 7.5 weeks
Oct 2013 - 6w6d ruptured ectopic
Jan 2014 - Chemical

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Re: TTC After Trisomy 13

Postby mrsm44 » Thu Jan 02, 2014 12:21 pm

After my loss, the doctor said I could bleed for 4 to 6 weeks...and I guess during that time, it was possible to ovulate and to get pregnant if we were to have unprotected sex. Three weeks later, I am no longer bleeding. For a couple of days, it was literally a spot a day on the pad...and then a few days of absolute nothing. I guess I am done bleeding? DH and I had unprotected sex one week and a day after our loss. I'm really not opposed to getting pregnant again right away. Obviously, it's also confusing as to when I will start my period, due to the cycle disruption. However, I have always been very regular (with the exception of when I came off of the BCP). Anyway, the thought of trying to get pregnant again is terrifying (naturally), after such a tragic loss at 21 weeks. We had just found out we were having a boy.
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