Has anyone cured their pcos?

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Has anyone cured their pcos?

Postby laomy » Tue Apr 01, 2014 10:15 am

I realize there is probably no "cure" as in, never having to deal with it again, but, has anyone out there ever gotten to the root of why they have pcos, and treated the root cause? is that even possible?

I am trying to learn and understand why I have pcos, so that I can focus on what's needed to overcome it. Of course I want to get pregnant, and doing that would be a huge step. but in the long run, I want to be healthy and I want my endocrine system functioning normally... so, I'm kind of on a mission.


for me, I have a "normal" BMI (23), always have been thin/petite, and I dont believe I am insulin resistant (but probably should be checked), and my thyroid is normal. Progesterone post-O could be higher, and I do ovulate each cycle. My cycles are irregular though -- my O date is all over the place, anywhere from CD18 to CD26... LP is ok, 12-13 days. Free testosterone is high though. I have dealt with acne for a long time, and also have unexplained hypertension controlled with low dose meds (though, now I know its because of my high free-T... I have had several scans of my heart/kidneys/arteries to make sure there were no defects or issues). And, I have polycystic ovaries, every u/s I have had. I also have elevated LH levels because OPKs are always dark even if they are not positive. I have to see a VERY dark line before I consider it positive.

I've read a lot out there, trying to figure out what the heck caused this.

I found a study that said thin women with PCOS have something in common -- they were born after 40 weeks gestation. This is me -- I was born at 43 weeks. My mom may have had pcos too -- she had symptoms like it in her 20s/30s..
http://www.ncbi.nlm.nih.gov/pubmed/9343501

Also, I had a copper IUD for 7 years. Before that, I was on the pill but only for a few months -- it made my blood pressure skyrocket, and gave me headaches/dizziness, so I switched to a non-hormonal IUD. My acne got much worse after getting the IUD, and I always thought it was a coincidence, or just adjusting from getting off the pill. I'm just starting to read if there is a connection between excess copper and pcos. I found this, and the study looked at lean women with pcos.. although cant say that the correlation is a cause:
http://www.ncbi.nlm.nih.gov/pubmed/23480818


anyway, just wondering if anyone out there ever got to their root causes of their PCOS and effectively treated it to reduce symptoms and get pregnant faster.

thanks!
Me and DH both 33 years old, TTC#1

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Re: Has anyone cured their pcos?

Postby stml » Thu Apr 10, 2014 3:32 am

hello.. I also have been diagnosed with pcos and ttc#1... Though I ovulate on my own my cycles are very long 35-45 days. I am not sure if this info helps u.. my gyn thinks my pcos may be due to my elevated prolactin levels...
Me: 27
DH: 29
TTC#1 since March 2013
Jan 2014: Diagnosed with PCOS :doh:
March 2014: Clomid 50mg & trigger shot - BFN
April 2014: 2nd round of Clomid 50mg 2-6days starting from 19/04 - BFN
May 2014: Round 3 of Clomid 50mg 2-6days starting from 18/05 - discarded due to slow growing follicles
June 2014: Unmedicated. Trying naturally! BFP - 16th July

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Re: Has anyone cured their pcos?

Postby Little-J » Thu May 15, 2014 11:18 am

Hello!

It was so interesting to read your post. I am 28 years old, just diagnosed with PCOS. I am lean and dont have high testosterone either, but irregular/long cycles and PCO-ovaries. I was totally fine with perfectly regular cycles when I was 22. Then I put in a Copper IUD. Had it for 5 years, and when I took it out - my cycle went nuts. Im trying to get regular by eating a low carb-diet and havent eaten any sugar in many months. In addition, I take Inositol, which is supposed to help. I also go for acupuncture.
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Re: Has anyone cured their pcos?

Postby laomy » Thu May 15, 2014 11:37 am

interesting about your IUD experience... I know my body seemed to go nuts, but right after I got my IUD in, like a few months later. But, it could have also been because I stopped taking the pill at the same time. I had the worst acne in my life at that point, and I also had developed benign breast tumors (fibroadenomae) which I had biopsied and removed. I never thought the IUD had anything to do with it because it wasn't hormonal. But, the copper may have played a role.

one thing I found online was this:
https://www.youtube.com/watch?v=qz4V_oNoclY

regarding PCOS. Explains the hormonal causes but doesn't get into what to do about it, at least not in that clip.

I know that copper and zinc play a balancing act. So, I have been taking a prenatal vitamin that has 25mg zinc, but no copper.

I have seen a big improvement taking 5mg of Femara, and supplementing with things that lower free-testosterone and raise progesterone, like omega 3s, spearmint tea, and vit C.

After doing that, I had an awesome report at the obgyn. My ovaries were much less poly cystic, I ovulated on CD14 (last month), and my 7DPO progesterone was 45 (without supplemental progesterone). Also, my acne has reduced. I also stopped eating so much sugar, so that my insulin doesn't spike.

So, it seems like Ive been able to manage my pcos with these things, but I am still always trying to understand it better...
Me and DH both 33 years old, TTC#1

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Re: Has anyone cured their pcos?

Postby sweetdemoness87 » Fri Jun 20, 2014 11:51 pm

I wish that I could say that I have. I found out when i was 16 that I have PCOS. With irregular and very painful periods I just had t find out what was wrong. But at the time I really didn't care or understand it. I was just like "sweet less periods" lol. But was put on birth control to regulate them. I stopped taking birth control at around 23 and my periods went all wonky again. I think that I have PCOS because my grandmother had diabetes. Which may have caused or not helped my issue.
I found out that I am diabetic (type 2) a year or so ago. So that does not help the PCOS at all. But anywho...

This post has really made me wonder about my PCOS again. All this TTC stuff has gotten me really trying to get healthier. I always try and tell myself that just because I have PCOS does not mean that I can not have children naturally. Because if i let myself think that I can not it is just a big downer.
☆Me:27
☆DH:27
☆Ttc #1 for: 8 months
☆I am: a diabetic《type2》 and have PCOS
☆I take: metforman 2000mg, Asprin, prenaital, progesterone

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Re: Has anyone cured their pcos?

Postby gemstone32 » Fri Aug 22, 2014 8:37 am

I too am hoping for a cure - PCOS has taken over my life! I'm 33 bcp for 10 yrs (off it last year) -mainly went on it for acne. Can't rem if my cycle was regular before that..ttc#1 cycle 6. I'm regular now, ovulate on my own, still got bad acne but dealing with it through diet and supplements.

Have you considered metformin - I'm gonna ask my doc abt getting on it. Read a lot of success abt it.
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Re: Has anyone cured their pcos?

Postby laomy » Fri Aug 22, 2014 8:53 am

I'm going to ask about metformin, but I highly doubt my pcos is due to insulin resistance. And if I dont have IR, I dont think metformin will be addressing the source of the issue and may not help much.

I have been reading a lot about the role of aromatase re: PCOS. The one thing PCOS sufferers have in common is elevated testosterone. Aromatase is the enzyme in/near the ovaries that converts testosterone to estrogen. There are some people who are just genetically predispositioned to have less of it for some reason. With less aromatase, it can also screw up the ratio of luteinizing hormone to folicle stimulating hormone... which means, theres less of the stuff that matures an egg, which is why pcos sufferers have lots of undermature egg follicles. I suspect I have a high LH:FSH ratio because my OPKs are ALWAYS positive, and OPKs measure the level of LH. Also my ovaries are polycystic in an ultra sound.

So for me personally, I really believe my pcos is genetic, and it has to do with aromatase, and not so much with insulin. I am thin (120lbs and 5'2") but not too thin. My cholesterol and tryglycerides are pristine, so I do not believe I have any kind of metabolic issues... Also, I know of a study that said women who were born late -- after 40 weeks gestation -- are prone to be thin PCOS women. My mom said I was born at 43 weeks. I wonder if being late like that affects the endocrine system and the behavior of aromatase, and is causing my issues...

The good thing is that there are ways to naturally increase aromatase (green tea, spearmint tea, alcohol... ). I do take Femara which is an aromatase inhibitor, which seems counter intuitive, but taken for just 5 days at the start of the cycle, it works in a negative feedback kind of way, though I dont fully understand it, but I think it makes your body produce more FSH because it thinks it doesnt have enough, and then all the other feedback cycles re: estrogen and progesterone production get back to normal....

that is my theory at least...
Me and DH both 33 years old, TTC#1

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Re: Has anyone cured their pcos?

Postby bluenoser » Fri Aug 22, 2014 9:52 am

I was just officially diagnosed a week ago, and at this point my Dr suspects I'm insulin resistant, which is why he put me on Metformin. I haven't been on it nearly long enough to see if it has actually helped. I am overweight and have been for many years and struggle to lose it. Because of this Dr suspects the Met will get things back in order and will help with weight loss.

On top of being overweight I was also blessed with excess hair growth in places a woman really doesn't want hair, never mind dark coarse hair, and to make it more fun I have non existent periods. So non existent I can't tell you when my last one was. I'm hoping through this journey some of these things get righted; I'm so tired of plucking and waxing, I just want to be done dealing with all this extra hair.

I was always regular, like clock work, up until I was about 21. I'm not sure what sparked the shift, but ever since my early 20s I've struggled with irregular cycles. I also struggle with frequent migraines and wonder if they may in part be due to my wonky hormones. Of course I want to be as healthy as I can be, but I also want nothing more than to bring a baby into the world. I am currently looking in to diet changes that are PCOS friendly and also baby friendly once I find myself pregnant.

Good luck to everyone! I hope you all find a regimen that works for you!
Me: 36
DH: 34
Stepdaughter: 11
Stepson: 9


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Re: Has anyone cured their pcos?

Postby Kaylewis » Sat Aug 23, 2014 1:09 pm

Please don't give up ladies, I was diagnosed with pcos at age twenty after missing my period for five months straight, they were very always irregular. I was short and quite overweight At the time. 5 ft 180 lbs to be exact which was the biggest I had ever been. I lost 40lbs over the summer and got pregnant by accident in October and he is now 4. After his birth I ha a mirena for a few years and it was horrible I didn't get periods and always had cyst on my ovaries. Had it removed in September 2013 and kept my weight down to my high school weight of 125- 135 and my cycles have been regular for a year with no cyst complications, I hope you ladies find what works for you and get your bfps soon :)
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Re: Has anyone cured their pcos?

Postby Alwaysherebefore » Mon Aug 25, 2014 8:49 pm

I just got a book call Natural Solutions to PCOS. I haven't finished the whole thing yet but I've made some pretty serious changes! The book is about how what you eat effects pcos whether your overweight or not. Of course I'm only a week in so I can't say how it's worked for me just yet. I really like how she explains the why for everything she suggests.

That changes aren't exactly easy , especially as DH isn't going along with me of this part of the journey, but when you consider what is to gain it really makes it a bit easier!
30, married Oct 2012
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Diagnosed with PCOS Aug 2014
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Re: Has anyone cured their pcos?

Postby laomy » Tue Aug 26, 2014 6:57 am

thats great :) I really believe diet makes a huge difference. And with PCOS, I think its all about controlling insulin, even if you're not overweight.

My doctor told me to follow the south beach diet, that was about 6 weeks ago. And at that point, I had been on Femara for several months, and had gone from ~134lbs to 124lbs without even trying, and I believe that was because my hormones were more in balance because of the femara. And in the 6 weeks of doing the south beach diet (not overly strict about it), I've lost another 5lbs, so I am at 119 now. I'm 5'2" so that is right where I should be.

I noticed most of the weight was lost around my stomach. I also noticed my bra size went up one, so I've gotten bigger on top, likely because my estrogen/progesterone are more what they should be.

Good luck!
Me and DH both 33 years old, TTC#1

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Re: Has anyone cured their pcos?

Postby midnight286 » Tue Aug 26, 2014 9:54 pm

Thank you for the info about thin PCOS sufferers. I have previously been diagnosed via multiple ultrasounds and blood work as having PCOS. I'm thin, 115lbs at 5'5" and have experienced missed periods, horrible acne, hirsutism and blood sugar problems since I was a child. My mother carried me for 44 weeks. I had no idea there was a connection!
For years I have tried to follow the paleo diet, which has helped immensely with my symptoms. In the last year I have started seeing a fertility specialist to try and prepare for artificial insemination (my wife doesn't produce sperm ;) and the ultrasound and bloodwork no longer indicates PCOS. I used to have upwards of 20 countable cysts on each ovary and now they are gone, the acne is gone and I get positive ovulation tests on the 14th day half the time. I still have some cycle irregularities.
This month I had a follicle get to 20 with no medical intervention, although lots of natural supplementation, and we did the HcG shot and the IUI the next day. I'm now 6 days post IUI but it feels like a year already. I can't wait to test on day 14.
There are many blogs about the paleo/primal lifestyle but theprimalparent.com was probably the one that hit closest to home.
Hope by now the original poster has her baby!
Best of luck to you all.
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Re: Has anyone cured their pcos?

Postby Alwaysherebefore » Fri Aug 29, 2014 5:53 pm

It's really nice to meet a few other thin pcos women. I was in denial for a while the first time a doctor suggested I had it because I wasn't even close to overweight. I hope we all find the best way to deal with our pcos and get the bfp we all long for!
30, married Oct 2012
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Diagnosed with PCOS Aug 2014
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Re: Has anyone cured their pcos?

Postby OCD2ww » Mon Sep 01, 2014 4:13 am

This thread makes me feel kinda dumb for knowing so little about a condition I have. The info I've looked at is confusing because of the range of severity and symptoms of PCOS.

Also, my doctor really hasn't done any tests at all, at least none I'm aware of. When women talk about testosterone levels, cysts on ovaries, or anything like that, I just have no idea. I'm certain that I have it, but that's kinda it. All I know is that I blindly did exactly what my doc told me because I trust him, and it totally got the job done. So I'm hoping it works this time, too. I want to learn more, but the same time I'm afraid it'll stress me out way too much.

One thing I am curious about is the insotisol. LittleJ, are you on D-chiro-insotisol or just plain insotisol? Where do you buy it from? I was thinking about trying it out, but the place I read about it said I should ask my doc before taking it if I'm already on Metformin. Anyone else tried it?
Me: 32 years old DH: 37 years old
DS: Born Feb. 6, 2012
TTC #2: No BC since March 2013, seriously trying since April 2014.
I have PCOS. I'm taking Metformin 1000g/day & Clomid 100g/day (on CD 1-5)
Cycles: 28-29 days
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Re: Has anyone cured their pcos?

Postby VanessaVictory » Fri Sep 19, 2014 10:39 am

Has anyone here tried concieve easy? You take it once a day for 2 or 3 months. I heard that it works for 7 diff causes of infertility, pcos being 1 of them. Just curious.
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