EndoDiet Support Group

Support for anyone who has been diagnosed with endometriosis, or thinks they may have endo.

Moderators: unaffected, JessM, southernbelle, maddy

Postby ete29 » Sun Feb 20, 2011 3:27 pm

Isn't that weird about yoga making your ovaries hurt? I thought it was just me :) The first time I had endometriomas, it would hurt after exercise. I think it was the treadmill that time. I am not on any BCP, when I went off them to have DS half my hair fell out! I am having such a hard time deciding if we're done having kids. Once we decide we are, DH will get the snip.

Do you think you crave sugar more than others? I have a huge thing for sugar. I wonder if it has anything to do with Endo?

Yay for europe! Where are you going? We went on a big tour before we began TTC. I think Venice and Amsterdam were two of my favorites, but they were all absolutely wonderful...would love to go back someday.
ete29
BabyDuster
BabyDuster
 
Posts: 130
Joined: Fri Aug 03, 2007 12:00 am

Postby Missdewy » Thu Feb 24, 2011 12:51 pm

Hows this diet coming? Is the family feeling better? I feel like the last time I talked to you everyone was sick!

I crave sugar like crazy, especially after a meal. Something about the balence of sugar and salt makes me crazy!

We're leaving in May for Europe. The current plan (though it seems to change dailey) is Fly into Frankfurt and right out to Rome, then florence/Tuscany, Chinque Terre, Venice, around the coast line slowly through Slovenia and Croatia until we hit Dubrovnik, a few days there then fly up to Prauge for 4 days and back home. It will be a crazy busy trip but I am SO exctied!
Me (Lindsey) 26, DH 28
TTC #1 since 5/09
Stage 3 endometriosis dx by lap 5/10
On the Endo Diet (no dairy, gluten)
Clomid cycles 1-4 - BFN after BFN
IVF 1 - Long Lupron Protocol, cancelled due to poor response.
Dx - DOR

IVF 1.5 with Dr. Sher in Vegas!
8 mature eggs, 6 made it blast!
Transfered 2 beautiful bubbles, 4 babies on ice!
Pos HPT 6dp5dt, First beta 8dp5dt = 62, second 10dp5dt = 160!
Ultrasounds at 7 wks, 8 wks, 10 wks and 12 wks looked great!

http://www.adventuresofendointhearctic.blogspot.com
<a href="http://lilypie.com/"><img src="http://lbdf.lilypie.com/o67em8.png" width="400" height="80" border="0" alt="Lilypie Pregnancy tickers" /></a>
User avatar
Missdewy
Member
Member
 
Posts: 44
Joined: Mon Aug 30, 2010 12:00 am
Location: Alaska

Postby bunny72 » Sun Mar 06, 2011 11:50 am

Can I join you guys? I have not been on this site for a while since I have been depressed a bit. I will be 39 next month and it will be 5 years of trying for my first one with endometriosis for almost 20 years. I have just changed my diet about one month ago. I also am changing my beauty products and other things to natural and organic. The only change I have seen this month is that my period was a lot ligther and I did not have those huge clots that kill me. I also take vitamins and some other herbs.
http://www.fertilityfriend.com/home/160fd6 Image Have endometriosis (stage 2) and problem with low sperm count. _____
me - 39 dh - 41 4 cycles of Clomid - BFN, 3 cycles of follistim - BFN currently - 4 Years and 11 Months trying Had lap done on September 26th, 2008. Removal of several polyps May 21st, 2010. Tiffany and Thumper who passed Jan/09 Image
User avatar
bunny72
BabyDuster
BabyDuster
 
Posts: 97
Joined: Wed Sep 13, 2006 12:00 am
Location: Chicago, IL (Rolling Meadows)

Postby Missdewy » Sat Mar 12, 2011 2:05 am

Welcome bunny! I've been slacking about tww lately so sorry I just saw your posting.

Are you doing the full diet Dian mills talks about in her book?

The biggest thing that I've noticed helps me is gluten. I see a huge reduction in pain. I have a whole page on it on my blog. More later, typing on my phone right now!
Me (Lindsey) 26, DH 28
TTC #1 since 5/09
Stage 3 endometriosis dx by lap 5/10
On the Endo Diet (no dairy, gluten)
Clomid cycles 1-4 - BFN after BFN
IVF 1 - Long Lupron Protocol, cancelled due to poor response.
Dx - DOR

IVF 1.5 with Dr. Sher in Vegas!
8 mature eggs, 6 made it blast!
Transfered 2 beautiful bubbles, 4 babies on ice!
Pos HPT 6dp5dt, First beta 8dp5dt = 62, second 10dp5dt = 160!
Ultrasounds at 7 wks, 8 wks, 10 wks and 12 wks looked great!

http://www.adventuresofendointhearctic.blogspot.com
<a href="http://lilypie.com/"><img src="http://lbdf.lilypie.com/o67em8.png" width="400" height="80" border="0" alt="Lilypie Pregnancy tickers" /></a>
User avatar
Missdewy
Member
Member
 
Posts: 44
Joined: Mon Aug 30, 2010 12:00 am
Location: Alaska

Postby KMP » Wed Mar 16, 2011 1:41 pm

Hey ladies,

I meant to jump in here a while ago, but never got around to it! So, I thought I'd check in now.

My history:

2000-2009 - deal with anxiety (now convinced this was all exacerbated by the food allergies...see January 2009 below)
May 2002 - diagnosed with microscopic colitis via biopsy from a colonoscopy after losing about 25 pounds in less than 3 months
May 2002 through early 2004 - ASA-5 to handle colitis
2005 - declared in remission, although still never feeling great
January 2009 - diagnosed with a wide range of food allergies by naturopath (including gluten); completely changed diet and have since felt 100x better
April 2009 - get married (to the greatest man around...seriously) and start trying for a family (no luck!!)
Late 2009-early 2010 - following a cyst via u/s ordered by my GP
Mid-2010 - referred to fertility clinic (clean HSG, 50mg clomid for 7 months, including 3 IUIs - all unsuccessful)
January 2011 - diagnosed with suspected endo by ob/gyn
March 2011 - break cycle (except for one monitoring u/s that showed 1 follicle at 14mm on CD12)
April 5, 2011 - laparoscopy for suspected endo

So, that's my story. I do my best to avoid all my allergens and feel much, much better when I do. It's so hard to stay away from them at all times, but I have found a number of excellent replacements over time. I'm more than willing to share...just let me know if you are interested.

Anyway, take care and FEEL well!
KMP
TTC Princess
TTC Princess
 
Posts: 228
Joined: Tue Nov 09, 2010 1:00 am

Postby jlojenjen » Wed Mar 16, 2011 4:58 pm

Hi ladies,

I tried to post last night in this group, something was going on with the messages. Do you mind if I drop in?

I, too, have been dealing with endo for over 15 years. I went through the horrible Lupron-induced menopause for over 2 years. Stopped the pain, but gave me all sorts of other issues (including an 80+ lb weight gain in ONE year!).

The ONLY thing that truly helped my endo was diet change. Same as some of the ladies above, gluten/dairy/soy allergies. I also had a naturopath do a food allergy test (blood test) and found 117 more allergens! I avoid the top 50, and I'm a new woman!

All of my cysts, endometriomas, and pain are gone. My RE even did surgery to remove some of the endo, and he said he thought I went from severe endo to mild in a few months. I asked him how that could happen, he said "medically speaking, I have no explanation for your improvement". I proceeded to tell him about my diet.

I also think acupuncture helped me. I had my first clear Saline Infusion last month, showing no uterine polyps...I usually have lots.

Glad to see others have been helped by diet change. I'll certainly be dropping in for more tips. If you ever want more info from me, let me know, I want to help anyone I can :D

Take care,
Jennie
Me - 37, DH - 46
http://broxtonbaby.blogspot.com/
Image

After 7 years of TTC...3 ivf's, 4 IUI's, and 2 miscarriages, we got pregnant naturally...God is good!

Beta#1: 8/20 - 286
Beta#2: 8/22 - 659 (doubling time 39 hrs)
Beta#3: 8/27 - 5,343 (doubling time 39hrs)
U/S#1 8/31 - Gest. sac and yolk sac (5wks/5days)
U/S #2 scheduled 9/10!!
jlojenjen
BabyDuster
BabyDuster
 
Posts: 107
Joined: Tue Feb 13, 2007 1:00 am
Location: Sunny Florida

Postby curteisye » Wed Mar 16, 2011 11:57 pm

Hey all, I have been following this thread as well. Just haven't been on much lately to really post. I thought maybe it was high time I joined the group too.

I was diagnosed with endo when I was 18 years old. I actually told my OB I had it and she agreed to do surgery, but really didn't believe she would find anything. She was shocked to discover I was right. I don't even know if they staged at that point. She just told me I had the worst case she had seen in someone my age. At that time I did what I thought was best according to medical literature and did Depo for a year. Bled for a year straight and came dangerously close to developing TSS. Never again.

Apparently I must have somehow known a little about how to treat my body because I have always been big on organic and eating chicken and fish and had shied away from red meat for years. I've had 2 repeat laps since my first. One showed no regrowth. The second showed regrowth of a patch the size of a quarter.

When DH and I started to try for baby #2 (baby #1 was our miracle surprise) with no luck I did the gambit of tests and treatments up to IUI. It was during this time I became truly obsessed with diet, excercise, accupuncture and herbs. I read the Infertility Cure and it changed my life. I cut out wheat (but not gluten), dairy and soy and became pg with twins 6 months later.

Unfortunately, we find ourselves down the IF path again and we have gone straight to IVF this time. I tried doing a similar diet to what I had done before with no luck so I have moved on to completely gluten free this time around. I find it amazing how many things have hidden glutens and hidden soy. I just bought a recipe book specifically designed for people with endo. I haven't tried anything from it yet, but I've been reading the recipes and it has really helped gain ideas to expand my diet. I have been wheat free, soy free, dairy free since August of last year and completely gluten free since December (I'll say going through the holidays was fun).
Carrie Me 37 DH 34 DS#1 7 ; DS#2&3 born 3/11/09. Lost DS#3 to SIDS 10/14/09 - I miss my angel every day. IVFx2, FETx2, still have 2 frozen
ImageImageImage
User avatar
curteisye
TTC Princess
TTC Princess
 
Posts: 171
Joined: Tue Jan 08, 2008 1:00 am
Location: Kansas

Postby ete29 » Sat Mar 19, 2011 11:45 am

Wow! I am glad to hear such inspiring stories about how diet changed your symptoms! I've been unmotivated recently and am eating too much sugar. I've cut my gluten intake by 2/3 (breakfast and dinner :) ) but havent cut it out entirely. I hope to feel more motivated when the weather is better.

On an up note - I've discovered some really yummy gluten free grocery items that stores are beginning to cary. Trader Joes has some delicious GF pancakes and Namaste foods has an amazing GF brownie mix. I have bought some other GF baking mixes but haven't used them yet.
ete29
BabyDuster
BabyDuster
 
Posts: 130
Joined: Fri Aug 03, 2007 12:00 am

Postby curteisye » Wed Mar 23, 2011 7:17 pm

I want to include Larabar as the best GF snack around. You can get them at your local health food store and they are GF, soy free and dairy free. My favorite is cinnamon roll. Reminds me of the ooey, gooey center part of a TJ cinnamon roll - yummmmm.
Carrie Me 37 DH 34 DS#1 7 ; DS#2&3 born 3/11/09. Lost DS#3 to SIDS 10/14/09 - I miss my angel every day. IVFx2, FETx2, still have 2 frozen
ImageImageImage
User avatar
curteisye
TTC Princess
TTC Princess
 
Posts: 171
Joined: Tue Jan 08, 2008 1:00 am
Location: Kansas

Postby KMP » Thu Mar 24, 2011 8:38 am

ete - I too have been eating too much sugar! I'm allergic to sugar cane, but every time I discover a new sugar type, I go a little bit crazy. I think it's because my diet is SO limited and I'm usually really disciplined. Beet sugar, agave, honey, maple syrup, palm sugar...it's the only place I really have a plethora of options (as long as I'm adding the sweetener to something and not trying to buy something pre-packaged...then it's a nightmare!). I'm slowly making the switch to stevia and/or xylitol, but it's tough because I find they both taste similar to aspartame!

Curt - agreed re: Larabars! I haven't had cinnamon roll...I got sick of key lime pie and apple pretty quickly, but I still love the good ol' peanut butter one. I do find them to be crazy expensive, but I've come across this site that has recipes for making them at home. I've yet to try any though...http://www.healthhabits.ca/2010/06/18/h ... r-recipes/

Also, I've recently discovered teff flour and can make cookies that are soft and super yummy and remind me a bit of Bear Paws in terms of consistency, but are nowhere near as sweet. Also have teff wraps! Sooooo good! If anyone is in Southern Ontario, there is a store in Waterloo called 'Healthy Foods & More' that specializes in food sensitivities (http://healthyfoodsandmore.com/) and their website has recipes and info on brands, etc.
KMP
TTC Princess
TTC Princess
 
Posts: 228
Joined: Tue Nov 09, 2010 1:00 am

Postby Missdewy » Mon Mar 28, 2011 11:20 am

Hey girls! Welcome to KMP, curteisye, and jlojenjen!

I'm so glad they're are more of us now! this diet has totally changed my life! Do any of you have a dehydrator? I just got a great recipe for a buckwheat GF/DF/SF pizza crust, made it Friday and it was delicious!

On Larabars, my local Costco sells them. Only 3 flavors though but I love them and they're way cheaper! I also just found some GF chibbatta rolls at my local health food store that are the closest to the real thing i've found in the 6 months I've been GF. I'll look up the name and then let you ladies know.

Also did you read the post on the POAS site about TWW being bought out? I started an account at www.theperkypickle.com my new name is endointhearctic and I started a diet thread overthere in the endo section.
Me (Lindsey) 26, DH 28
TTC #1 since 5/09
Stage 3 endometriosis dx by lap 5/10
On the Endo Diet (no dairy, gluten)
Clomid cycles 1-4 - BFN after BFN
IVF 1 - Long Lupron Protocol, cancelled due to poor response.
Dx - DOR

IVF 1.5 with Dr. Sher in Vegas!
8 mature eggs, 6 made it blast!
Transfered 2 beautiful bubbles, 4 babies on ice!
Pos HPT 6dp5dt, First beta 8dp5dt = 62, second 10dp5dt = 160!
Ultrasounds at 7 wks, 8 wks, 10 wks and 12 wks looked great!

http://www.adventuresofendointhearctic.blogspot.com
<a href="http://lilypie.com/"><img src="http://lbdf.lilypie.com/o67em8.png" width="400" height="80" border="0" alt="Lilypie Pregnancy tickers" /></a>
User avatar
Missdewy
Member
Member
 
Posts: 44
Joined: Mon Aug 30, 2010 12:00 am
Location: Alaska

Postby AnnaJuly » Thu Mar 31, 2011 4:13 am

Just wanted to throw in - going gluten free works for many people with endo - because endo is caused by inflammation often from Celiacs disease. If the Celiac is not aggravated the inflammation is lessened. If you have endo - get tested for Celiacs - many autoimmune diseases go hand in hand. Many people have several.
AnnaJuly
Girlfriend
Girlfriend
 
Posts: 904
Joined: Sat Nov 15, 2008 1:00 am

Previous

Return to Endometriosis