Recently Diagnosed w/stage 4 Endo!! SO many questions!!

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Recently Diagnosed w/stage 4 Endo!! SO many questions!!

Postby KeepingTheFaith03 » Sun Sep 18, 2011 9:41 am

I was just recently diagnosed with stage 4 endometriosis and I am scheduled for a laparoscopy next month! My question to everyone is what are your experiences with success with IUI and Clomid after a laparoscopy and what are your Doctors telling you your success rates will be??

My Fertility specialist wants us to have the surgery and then trry 3 rounds of IUI and clomid and then if that does not work move on to IVF..anyone have any advice at all to spare??
<strong>Brooke&amp;hearts;</strong>
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Postby AnnaJuly » Mon Sep 19, 2011 11:05 am

Sorry, this section is pretty quiet.... I will not be able to help as in my case the endo was too dangerous to remove according to the doc, except on one ovary. I was put on bcp for a few months - told I could try to ttc naturally but she expects I will need ivf.
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Postby KeepingTheFaith03 » Tue Sep 20, 2011 2:28 pm

Bummer, I was hoping someone with similar problems could help me out. lol

Yeah my doctor seems to think iui is not out of the question and wont be a waste to try. But naturally she thinks i wouldnt have a chance of concieving, sadly! I hope im not making a huge mistake with iui!
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Postby AnnaJuly » Thu Sep 22, 2011 3:57 am

I dunno :dunno: My endo is pretty severe but they do not list by stages here but I am guessing 4 or 5.... Aside from one tube stuck to my stomach my tubes are good. I had half of one ovary removed but was told it would recover.
From what I understand - the thing with endo is you have better odds if your ovaries and tubes are clean.
There is the whole toxidity issue but that seems to be a matter of debate.
So I suppose if you ovulate normally an IUI is not a crazy idea :luck:
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Re: Recently Diagnosed w/stage 4 Endo!! SO many questions!!

Postby ladybugamber » Sat Sep 24, 2011 6:00 am

KeepingTheFaith03 wrote:I was just recently diagnosed with stage 4 endometriosis and I am scheduled for a laparoscopy next month! My question to everyone is what are your experiences with success with IUI and Clomid after a laparoscopy and what are your Doctors telling you your success rates will be??

My Fertility specialist wants us to have the surgery and then trry 3 rounds of IUI and clomid and then if that does not work move on to IVF..anyone have any advice at all to spare??


I had the laparoscopy, took Lupron injections for 6 months, came off in July and got pregnant on my own in September. Keep in mind, I had already scheduled my hysterectomy for December of that year. There is ALWAYS hope. I remember praying one night asking God to show the doctors how big He was. And boy did He ever!!! :) Don't give up!! Miracles happen every day!
Amber

Wife to Josh for 6 years!
Mama to Zachary(5) Brennon (4) Tripp (2) and baby #4 due May 2011. Living with HG throughout this pregnancy and hoping it doesn't kill me in the process!
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Postby Pr1ncess » Tue Oct 04, 2011 3:10 am

Hi There,

Yes this section seems to be quite quiet which i find surprising, there are so many of us suffering from endo I thought there would be more on these boards.

Anyway I have alot of endo. I'm from the UK and my consultant doesnt really group it in stages but I would say stage 3-4 correct me if i'm wrong but is stage 4 the highest it goes?

I was diagnosed back in 2004, i have just recently had another lap on 8th Sept and have recovered well. I already have another little girl and i manged to fall on naturally with her it can be done!

I think the advice from your doc is good but depending on where your endo is located then IVF might be the quicker route to getting pregnant but obviously IUI is fat less invasive. IVF is a bigger commitment and more for your body to go through, i've just gone through this with my friend who has to do IVF as her hubby has a low sperm count she has one boy (3rd ivf cycle) and she is now pregnant with twins (2nd ivf cycle)

Hubby and I had just started the IVF process when we feel pregnant with our first.

I'm not massively experienced with everything but I suffer from endo myself and have helped a few friends through ivf and in my particular group of friends IVF has been more sucessful than IUI but again its far more invasive.

Sending you lots and lots of baby dust hunni

XXX
ME: 29 (Suffer from Endometriosis) DH: 29
TTC: #1 (9 months) Erin Grace born 14th June 2009
TTC: #2 (2 months)
Lap: Sept 2004 Lap Booked 8th Sept 2011
Blazing BFP - 24th September 2008
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Postby curteisye » Tue Oct 04, 2011 7:40 am

They say IVF is much more successful for people with endo than IUI because there are two issues involved. Endo prevents the sperm and egg from meeting and if they do get together, it can prevent implantation. That being said, I do know it also depends on where the endo is located on what your chances are for success. My endo has always been on the uterine walls and never on my ovaries or tubes. I was diagnosed very early (age 18) with the worse case they had seen at my age (that was as close as I have ever been to a staging), so I did everything early on from depo to diet to prevent the regrowth after surgery and was one of the lucky ones who was able to keep it away for a number of years. I had surgery done for mild regrowth right before I had my IUIs done, but we did not use clomid, we used injectables because the estrogen mimics in clomid can increase the regrowth of endo. We were successful with our third round of IUI so it can happen. I had also gotten pg naturally prior to this by shear luck I think because it has been much more difficult ever since. This time around in order to achieve success we did IVF and I went completely gluten, soy, and dairy free to improve my chances of implantation success.
Carrie Me 37 DH 34 DS#1 7 ; DS#2&3 born 3/11/09. Lost DS#3 to SIDS 10/14/09 - I miss my angel every day. IVFx2, FETx2, still have 2 frozen
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Postby gapeach427 » Wed Nov 16, 2011 6:47 pm

Hi! For me, I was able to get pregnant with our son using meds only. It seems like things started acting up when TTC #2. We've been trying for 2+ years, have gone through 4 unsuccessful IUIs (3 pre-lap, 1 post-lap) and a m/c. I was diagnosed with mild endo (I guess Stage 1), but I also only have one ovary and tube and have mild PCOS. My endo has affected my ovary, tube, and back of uterus. While most of the endo was removed in May when I had the lap, it grows back. It's hard to predict how fast it will come back, but I've heard fertility meds can speed up that process. My RE recommended IVF since it would by-pass any issues from the endo (my ovary was surrounded in scar tissue/endo and was attached to abdominal wall, so there was no way for the sperm and egg to meet. I think IUIs are great if there is a sperm issue, but for endo, IVF may be the most cost-effective option (from my personal experience).

It really depends on where the endo is and if there are any anatomical issues (with ovary or tube being affected). A good friend of mine has Stage 4 endo; however, she got pregnant on her own without any meds or intervention.
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Me---34; DH---39
PCOS, endo, one ovary and tube; MFI

Oct 2008: Evan is here! 7lbs 14oz, 20.75 inches; C-Section

TTC #2 since Sept 2009
BFN= 4 IUIs, multiple Femara-only cycles, a few Follistim cycles with TI
:angel: @6w4d, May 2010

August 2012: IVF #1 (5dt of two 2BB blasts)
Beta #1, 11dp5dt= 295
Beta #2, 13dp5dt= 825 (doubling time of 32 hours!); progesterone 130
1st u/s: 9/24

<a href="http://www.thepcospeach.blogspot.com/">My TTC Blog</a>
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