Support for anyone who has been diagnosed with endometriosis, or thinks they may have endo.
Fri Jan 16, 2015 2:25 am
Id like to tell you a story about my journey thus far, and any insight, or information, would be greatly appreciated!
For me it all started back in July of 2014 around the 4th of July, I was hit with this bring me to my knees kind of pain from my right ovary. I have PCOS, was diagnosed with it when I was 16, so I'm used to the pains, and the nonexsisting periods. I guess I should say, my periods are very irregular and my last cycle was in April of 2014, and not sure when the last one before that one was...but anyway. Horrible pain hit, I thought maybe I'm about to start? Maybe its an infection, I had no clue, but the pain lasted a few weeks, so I made an appointment with my obgyn. While I was there for my appointment all that was conducted was a vaginal ultrasound, didn't hurt, felt fine, she went over the results, said that I probably had a cyst rupture, and sent me on my way.
Few weeks later, now in August of 2014, my lower back starts to give me a lot of trouble, along with my right ovary, the pain was so severe I was put on medical leave from my primary doctor because I was to the point standing was no longer an option. Finally after tests, and mri's, I was told I had a pretty good sized cyst on my right ovary, and I needed to have another ultrasound to have it checked out. I thought ok, I was just there, and I needed this again? What's going on!!?? So I made the appointment, again, showed up a week or so later..could barely move because of my back pain, plus ovary pain..then when the nurse went to do the ultrasound I screamed at the top of my lungs, it was the worst pain I had ever felt, I don't know how else to describe it, I laid there and cried wishing she would hurry, finally when she was finished, I knew the results couldn't be good...and they weren't. Some how in a months time my endometrium was almost 3 inches, yes inches thick! I'm thinking how did she not see this the first time?? But this is where I learned that I 99% had a chance of having endometriosis, which we always thought I had, because i had all the signs, but now she's like you need surgery, and soon.
So on October 6, 2014 I had a D&C, Hystascopy, and Laprascopy (I hope I spelled those right!) And turns out I do infact have endometriosis, and pcos, and a nice little thing called hyperplasia that makes me bleed pretty heavily, but since I never had a period the blood was just building up. So I was very upset, I was thinking oh no, I want babies! I'm 27, and I'm falling apart...how can this happen? So from the day after surgery I was put on Provera 2.5mg once a day for 3 months, because I was scheduled for another D&C in January of 2015 to see how everything was. While on the Provera throughout the course of the 3 months, I kept spotting, so I got bumped up to 5mg, then finally to 10mg.
January 2015 had my 2nd D&C, way easier this time around, and got great news, my uterus was clean, and no growths! I was told to stop the Provera, and to let my periods get on track! My fiance and I, are ttc were hoping that this helps!!!
Has anyone else been through something similar?
Fri Jan 16, 2015 5:41 pm
not quite as bad as you, but I have PCOS and endo. I had a lap in December 2013 to clean things out. ultimately we ended up doing IVF, but that may have been a compounding function of several issues- small tubes and DH's sperm unable to penetrate my eggs. If you ever get to the point where you are doing fertility drugs be careful with your PCOS- I got a whopper of a complex chocolate cyst that had to be removed. good luck!!
Sun Mar 08, 2015 1:44 pm
I had my six week follow up February 26th, Gyno said everything was good to go for ttc, she put me on provera 5mg for 5 days, and clomid 50mg to start on cd 3-8. This is my first time ttc, and my fiance and I are so excited! I'm hoping I'm doing everything right, I just started my first clomid today ( I'm on cd3) and just waiting for my fertile days
Thu Apr 19, 2018 6:15 am
I can definitely relate. I was diagnosed on endo& long time ago. I'm not young with infertility treatments failures behind. Most of the symptoms are still remaining. This time seeking luck with DE ivf, as OE are of no use. I wish this way could be smoother to more ladies struggling. My heart goes for you..
Wed Aug 15, 2018 7:11 am
Hello there! I am so amazed that you have the same condition as me. I was suffering from PCOS last year. Because of this doctors declared me infertile. It was worst for me to accept this reality. Then my husband supports me fully. By his love and kindness, I become able to defeat this situation. Now I accept this reality because I know there are many solutions. Through this solution, we can handle our this problem. For me I choose surrogacy. I searched a lot about this treatment. Its success rate is very high. A clinic named Biotecxom offer this treatment. They will soon organize their event. The dates and venues have not been fixed. I am waiting for their event. You please also contact them in this regard. It will be the best decision for you. You will find the optimal solution related to your problem.
Sun Oct 28, 2018 10:26 am
You are a very strong woman. I am sure being diagnosed with endometriosis along with PCOS must have been really difficult. However, you dealt with things bravely. I am sure you will be able to conceive. However, if things do get a bit difficult then I would suggest not to lose hope. Assisted conceptions are being used by a lot of people. Technology has drastically improved so I am sure there is nothing to worry about. However, for the process, my advice to you would be to ensure that the clinic you visit is operating at a high success rate. I have also started visiting a clinic for my process. So far things are going really well. We were recently called for the first visit. The visit was for free and that visit did really help us make the decision. I really liked how we were being given individual attention. We had a manager who made sure we were not forgetting anything and were up to date. Sending baby dust your way.
Mon Nov 19, 2018 6:42 am
I'm sorry to hear all this. How unregular your periods are? Are they exceedingly painful? Are they unusually light or heavy? Skipped or irregular periods indicate you’re not ovulating, and that’s a problem if you’re trying to get pregnant. You may have undiagnosed endometriosis or PCOS, two very common causes of female infertility. Have you had recurrent miscarriages? Sometimes the shape of the uterus can affect a woman’s ability to conceive and/or carry a baby full term. Blocked fallopian tubes also pose a problem. Your OB/GYN can use imaging to partially figure this out, although more specific tests may be required if imaging isn’t detailed enough to provide a clear picture of what’s going on (or not going on) in there. Finally, iIf you don’t have a good GYN, it’s worth it to visit a few and choose the one you like best. So you have someone who you’re comfortable with and who will go to bat for you. While they aren’t experts at infertility diagnoses, a good OB can certainly rule out some of the most common causes for why fertility seems to be an issue for you. Hoping for some good changes for you soon.