First trimester screening yes or no

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First trimester screening yes or no

Postby erin860 » Thu Dec 03, 2015 11:05 am

Hi ladies, I'm scheduled for my first trimestering screening next week but I'm having second thoughts about it. I have had a problem with worrying during this pregnancy (this is my 1st pregnancy). In your opinions do you recommend the screening for a worrier. I'm sure if my numbers come back good it will ease my worry but if they come back bad my worry will be worse. Not sure what to do...any recommendations?
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Re: First trimester screening yes or no

Postby justxher » Thu Dec 03, 2015 11:34 am

Does it come with the NT scan? I personally do it for the extra ultrasound so that I can see my baby at 12 weeks and it helps to put me at ease. I have read about a lot of false positives on those though, so it could cause more worry than necessary. It's tough to say..
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Re: First trimester screening yes or no

Postby SarahCHW » Thu Dec 03, 2015 12:54 pm

I opted out because of all the false positives and because both my husband and I are healthy and 26. I felt really good about my choice, but I did start to get really worried around my 20 week anatomy scan. Not sure if the earlier scan would have made me feel more comfortable leading up to the 20 week or if I would have been worried anyway...
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Re: First trimester screening yes or no

Postby Amanda0713 » Thu Dec 03, 2015 3:32 pm

I think it is a personal choice. I'm a huge worrier and I have suffered a MC in the past which makes it worse. Still, the unknown for me is scarier. If I skipped the screening I know my mind would be so scared about all the possibilities the whole time. If you get a positive or false positive, which happen but are rare, you'd still worry yes, but if it's negative you can stop. So if you think the unknown would make you worry, and a positive would make you worry, then I'd take the road where you would likely get good news. However if you are ok with the unknown, then it's really just a choice on if you would use the information to make any changes. Good luck in your choice. You'll make the right decision for yourself
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Re: First trimester screening yes or no

Postby FrostedFuji » Thu Dec 03, 2015 5:20 pm

Will they do only the basic screen, or do you have the option of the Harmony? The Harmony is extremely accurate, so if it is an option I do highly recommend it.

My DH and I opted to get the screen. We agreed that it would not change our decision to have the baby, but in the event that something was going on I really wanted to be as prepared as possible. I'm very big on research, so I would have wanted to learn about any specialists in my area, read up on related complications (for example, Down Syndrome is very often comorbid with heart problems), etc.

It is absolutely a personal choice, and there is no wrong option. I'm also very much a worrier and had we not gotten the screens done (we were able to get the Harmony) I definitely would have worried more. It's very much a matter of knowing what will make you rest easiest and allow you to feel prepared for your baby. Also know that if you get results indicating you're at high risk, you always have the option of further testing to confirm.
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Re: First trimester screening yes or no

Postby alecita1987 » Thu Dec 03, 2015 7:33 pm

I initially planned on getting the first trimester screening (blood test + NT scan), but due to my DH starting a new job and us not having insurance just yet I came to find out that I was going to have to pay a big amount of money out of pocket for it. Also while I was trying to decide if it was worth it to pay that much to maybe get a false positive I learned from my midwife that the clinic I was supposed to go was only gonna do a special kinf of blood test, no ultrasound. That's when I realized that I was mostly doing it because I really wanted to see the baby, not because I wanted to find out if there was somethig wrong or not. My DH and I talked about it before making a final decision and me being a worrier as well I decided that I did not want to give myself another headache in case I got a false positive on a test. My first pregnancy ended in mc and I never got to hear my first baby's HB. I feel blessed that so far this pregnancy is going well and that I've had two succesful ultrasounds and that I can hear the HB at home with the doppler everyday if I want to. Honestly after going through a loss, that HB is all I need. I can feel it in my heart that my baby will be just fine. We are both young, healthy, with no family history of Down's Syndrome or anything else and while we could still be the first ones in our families to have a special needs baby, the fact that this baby is now alive is a blessing to us.

I hope you and your DH don't have a hard time making a decision. Do whatever is best for the both of you. I wanted to share my personal story with you in case you decide to opt out... Know that you're not the only one and that there's no reason to feel "guilty" about it when everybody else around you seems to be getting screenings done.

P.S: I ended up paying $75 for a regular ultrasound and saw my baby yesterday moving around and measuring ahead and everything. It wasn't a NT scan but I'm happy all the same :).
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Re: First trimester screening yes or no

Postby HighlandGamesGirlCO » Fri Dec 04, 2015 8:36 am

I definitely got the screening - being over 35 myself, and having lost a child with T21 (Downs) at 14 weeks, I needed to know. Also - the NT scan detects only about 60% of cases of Downs. The little boy I lost was within normal limits on his NT scan, but T21 was detected via Harmony, and again with chorionic villus sampling.

I want to make something VERY clear to others, not to scare you, but to impress upon you the significance...I, too, and DH, had ZERO family history of Downs. NOT ONE INCIDENT throughout many generations, and it still happened. It can happen anytime, so if it's a concern, yes the test is expensive but well worth it in my eyes.

Thankfully this baby is perfectly healthy, and the chances of another T21 baby are only about 1%. I am grateful my insurance covered the Harmony test, but I would have paid the $500 for peace of mind in a hot minute if I had to.

Good luck!! :)
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Re: First trimester screening yes or no

Postby TrebleLily » Fri Dec 04, 2015 9:26 am

I decided not to do any screening after I found out how high the false positives are on the NT scan. Here (in Canada) the option is to have an NT screen, then if that shows something you can go for cvs or amnio. Knowing the high rate of false positives on NT, but then the high risk of miscarriage with the other two tests, I just didn't want that stress. I asked about the blood screening I've been hearing about on the forums here and my midwife said that those are only covered for women over 40years old. If I wanted to pay for it I could get it done, but it was quoted at $900.

While I understand some people need time to prepare for having a special needs child, I honestly feel like I'm already prepared. My mom works with special needs children and I've been around them all my life. I also work with clients with developmental disabilities and have training/knowledge of many diagnosis and behavior disorders through my two degrees. So if we have a child with Down syndrome or something else, I'm really not concerned. That baby will be loved like crazy and provided with every opportunity to reach its full potential.
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Re: First trimester screening yes or no

Postby justxher » Sat Dec 05, 2015 9:54 am

Hi treblelily, I just wanted to say for the sake of other people reading this that in Canada it actually varies based on where you live. I am also from Canada and at my hospital the practice is that if the first trimester screening comes back high risk for anything, they first do the NIPT test (Harmony, Panorama, Verifi, etc..) before proceeding to amnio or cvs. So there is no risk of miscarriage unless your NIPT test comes back high risk and then you choose to do an amnio to confirm, but those blood tests have an accuracy of 99%. In Ontario the government pays for the NIPT test fully if any of your first trimester screening results come back high risk, or if you have ever had a previous pregnancy with a chromosomal abnormality.
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Re: First trimester screening yes or no

Postby TrebleLily » Sat Dec 05, 2015 12:52 pm

justxher wrote:Hi treblelily, I just wanted to say for the sake of other people reading this that in Canada it actually varies based on where you live. I am also from Canada and at my hospital the practice is that if the first trimester screening comes back high risk for anything, they first do the NIPT test (Harmony, Panorama, Verifi, etc..) before proceeding to amnio or cvs. So there is no risk of miscarriage unless your NIPT test comes back high risk and then you choose to do an amnio to confirm, but those blood tests have an accuracy of 99%. In Ontario the government pays for the NIPT test fully if any of your first trimester screening results come back high risk, or if you have ever had a previous pregnancy with a chromosomal abnormality.



Nice! That's good to hear. It really doesn't make sense to me that they would continue to use high risk tests like amnio when a much safer (and very accurate!) option is avilable.
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Re: First trimester screening yes or no

Postby erin860 » Sat Dec 05, 2015 2:45 pm

Thanks for all of your replies ladies. Your thoughts did give me a lot to think about. Personally, I am going to go because I am afraid if I do not I will wonder throughout the rest of my pregnancy and wish I would have had the test. Plus, I want to see our baby again! I too am all about research so I like what FrostedFugi said about being able to prepare myself as much as possible. I don't know if I am getting the Harmony or not but I am guessing no because my doctor never used that language. At my 10 week appointment she just asked if we would be doing the first trimester screening and if so she said a receptionist would call to set up a appointment time. I also agree with Amanda that the unknown is scarier than reality sometimes. That is definitely true for me; but, I also know that God will not give us anything that we cannot handle so we'll be okay no matter what the results. Again, thank you to everyone to responded, it is very comforting to have people to talk to and with this being my first pregnancy I feel like I have a lot of questions.
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