Potters Syndrome

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Potters Syndrome

Postby nanette78 » Mon May 24, 2010 9:41 am

Today we go to see a specialist to see if our little guy has Potters Syndrome, absence of kidneys, which would be linked to my little to no fluid because the baby can't produce urine. Has anyone had a baby with this? I know this is a fatal thing and if this is what the baby has I will be given 2 choices. To induce labor now, try and carry the baby full term knowing it will only live minutes after birth but could also die in utero on its own. As much as I am looking forward to having another u/s and getting the chance to see him again I am scared to death to go and hear his dx. :(
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Madison Rochelle- born 2/5/2002
Andrew Lee-born 2/15/2005
Makenna Alisa-born7/25/2007
Dylan Matthew- born @ 21 weeks and grew wings
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Postby kjdandjbd » Mon May 24, 2010 11:42 am

My first daughter had Potter's, we didn't find out about it until after she was born though. I am so sorry you are facing this, I really hope you just have low fluid and not Potters, no one should have to get this diagnosis. If you have any questions please PM me. **HUG**
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Postby momtosix » Mon May 24, 2010 11:43 am

Wishing you hope and good luck that it is not Potters.Thought and many prayers for you!!!!!!!!!!
Suri Mother to Shalom (21) Ariella(18} Gabriel (15) Kayla (11) Ezra(6 ) Noah (2}
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Postby nanette78 » Mon May 24, 2010 7:41 pm

confirmed... potters syndrome stage 4, bilteral kidney failure we will be induced next week.
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Madison Rochelle- born 2/5/2002
Andrew Lee-born 2/15/2005
Makenna Alisa-born7/25/2007
Dylan Matthew- born @ 21 weeks and grew wings
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Postby eh_ep » Mon May 24, 2010 11:00 pm

I'm so sorry.

Praying for you and your family...
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:angel: M/C sept 1, 2007 5w1d
:angel: M/C Feb 6, 2008 11w3d D&C feb 8
:hb:DD: Dec 20, 2008
:angel: M/C Jan 28, 2014 5w3d
BFP June 24 11dpo due March 6, 2014
:angel: M/C July 1, 2014 4w4d
BFP May 20 9dpo due February 1, 2016
Beta 14dpo 101
Beta 16dpo 172
Beta 18dpo 414
Beta 35dpo 36265
First U/S 7 weeks :hb: 126
Second U/S 11 weeks :hb: 175

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Postby Mrs_Lurker » Tue May 25, 2010 12:30 am

Just wanted to offer prayers. I'm so sorry. :hugs:
Lily
DD born 3/30/07
DS born 2/3/10 w/ OI type I
M/C 6/29/11 (4wks)
#3 EDD: 10/3/12
Beta @ 13 dpo - 172
3/26/12 (12W5D) - we learned we're having a BOY!!
5/31/12 Yep, he's still a boy. ; P
DS born 9/25/12

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Postby macleesy » Tue May 25, 2010 2:32 am

I am so so sorry to hear this. My heart goes out to you and your family.

I don't presume to know how you must be feeling, though sadly I do know the ache of your heart. I would like to give you some advice - please take this sad time, overcome how you are feeling, to make some wonderful memories of your little boy. Some things: pick a beautiful outfit and soft wrap for him, choose matching teddy bears, one as his forever bear, and one for you. Decide and be prepared to do all the things you want to and can do when he arrives. Take his footprints and hand prints, give him a bath. Play him some music, sing him a song. Don't be rushed, hold him as long as you want, get photos done. anything you want.

Some sites that may be of help to you

http://www.nowilaymedowntosleep.org/
http://www.poorprenataldiagnosis.com/
http://www.benotafraid.net/
http://www.aheartbreakingchoice.com/ahcsitenav.html
Lisa
Erin Nicole19 Dec 07
Annah Paige 2 Jan 11
Connor John 26 May to 7 Aug 09
My beautiful angel. :angel: So far from my reach, but so close to my heart.

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Postby mom2abandkb » Tue May 25, 2010 3:55 pm

Hugs! I'm so sorry to read this. I can't imagine the pain you and your family are going through. My heart and prayers go out to you during this horrible time.
Lisa-37 dh-33 dd-6
Kiran 8/17/09 2lb 7oz, 14.5 (pre e,HELLP, vp)
Hernia surgery 11/5/09,G tube 7/24/10
130 days NICU- reflux,hypotonia,ptosis,2 meds 2x/day
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http://www.caringbridge.org/visit/kirangoel
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Postby Laureenjellybean » Tue May 25, 2010 5:44 pm

I am so, so very sorry for the pain that you are going through right now. My heart goes out to you and your family. May you find some peace and comfort somewhere in this difficult process. Big hugs!
Me: Laureen (30)
DH: Kenny (30)
Ds:Carter (2) (born Feb. 23, 2009)
DD: Calliana (born Oct 3,2010)
:angel: Feb 08' Baby Angelo-left us to Triploidy
:angel: :angel:-Nov 09' twin blighted ovum
:angel: July 11' early m/c
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Postby bernababe » Wed May 26, 2010 9:27 pm

I had a late loss in 2007 due to fatal anomalies....please let me know if you need anything or want to talk.

God bless you and your family...
DD- 10yrs
DS2-3 yrs
Due in december! EDD 12/31/2013
Our angel Kyle Ethan 07/2007 @ 24wks
m/c 5weeks 4days July 2009
m/c 5weeks April 2011
Baby Fiona due 12/31/2013
PCOS dx 2009

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Postby momtosix » Thu May 27, 2010 12:08 pm

So sorry to read this.My heart goes out to you and your family during this terrible time.
Suri Mother to Shalom (21) Ariella(18} Gabriel (15) Kayla (11) Ezra(6 ) Noah (2}
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Postby Lizc0002 » Fri May 28, 2010 7:46 am

I am so sorry for your sad diagnosis. Sending healing loving hugs to you and your family.

Liz
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Postby JADE0199 » Sun May 30, 2010 2:27 pm

I am so terribly sorry for your loss :cry:
Cathy 43~DH 41
3 m/c's
IVF#1 5/07-BFN • DE IVF#2 -no tx
DE IVF#3. ID twin boys born 9/25/08
FET#1 9/09-chem • FET#2 11/09-BFN
IVF#4 w/DE. DD born 11/3/10
FET#3 b/g twins born 7/25/12
FET#4 ITS A BOY! born 5/8/14


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Postby lollyp » Mon May 31, 2010 11:49 pm

I am so sorry for your loss - I have been through similar and agree with a pp that suggested you visit aheartbreakingchoice.com - the support there kept me together.

Thinking of you and your family at this difficult time

Laura x
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Postby Nikkijames » Tue Jun 01, 2010 7:40 am

I am so very, very sorry :cry: :hugs:
Melissa, DH, Hunter 12 Julianna 11, Harley 5, Dylan 4, and Piper 2.
Due 9/14/2015 with our last addition

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