Bilateral club feet?

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Postby lizzen » Wed Aug 13, 2008 12:47 pm

Hey ladies! I just wanted to pop in and let you know that I had an US with the peri today and this little baby's feet are PERFECT!! I was really happy to hear it. And it's a boy!!!
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby Aggie97 » Wed Aug 13, 2008 12:49 pm

CONGRATULATIONS!! I know you must be terribly relieved!!!
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Postby lizzen » Wed Aug 13, 2008 4:27 pm

Yeah, it was a big relief. I mean, I know it wouldn't be the end of the world if this one had CF, too, obviously. But it's nice to know that we won't be dealing with weekly cast changes and bracing two kids!!
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby manynums » Mon Oct 13, 2008 8:46 pm

Hey girls...

Sasha is out of her casts and just passed her one month brace appointment with flying colors. She has a Dobbs brace and sees Dr. M Dobbs at Children's Hospital in St Louis. He's awesome and like Lizzen's doctor, Dobbs studied with Dr Ponsetti. Did you know Ponsetti STILL sees patients in Iowa? He's in his late 80s now...

Some pics of Sasha's feet. These have been on the Cloth Diaper board, but I want any new diagnosis mamas to see how far she's come in such a short period. 6 sets of casts. One tenotomy. No major surgery. No cutting of tendons.

Sasha ready for bed with her brace on:

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Sasha's feet at 4 months:

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Sasha in her Bumbo seat at 4 months:

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Her feet were not only turned in, but also completely curled up. Her legs looked like chicken wings. There is so much hope...just make sure to find a doctor who was trained by Ponsetti.
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Postby lizzen » Tue Oct 14, 2008 6:45 am

Oh, just look at her!! She looks so great, those are perfect little feet!! :D

Dr. Ponseti is amazing! All of the parents who go to him said that he is SO worth visiting, even if you have to wait until after his daily nap! This a man so committed to his cause. It's a shame he doesn't get wider recognition for his accomplishments. His method has improved the quality of life for thousands of children all over the world, I feel so lucky to be seeing a doctor who studied with the master himself.

I'll have to go through my pics when I have some time and post some of before, during and after treatment.

Congrats to you and Sasha! You'll be done with the 23/7 protocol before you know it!!
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby Aggie97 » Tue Oct 14, 2008 7:50 am

Sasha looks wonderful! Alex was able to stop the 23/7 schedule on July 4th and that was a great day! He is doing fantastic with his braces (Markell shoes with the Horton brace) and every time we take him for his checkup at Scottish Rite, they tell us his feet look "perfect". What every mama wants/needs to hear! :) I have even contacted Dr P himself and sent him pictures, just to make sure that HE believed they looked perfect and he agreed. I think it's awesome that you can email him pictures (he's specific about what kinds of pictures he wants to see, though) and I heard back within 48 hours.

Good luck with everything and just know there IS a light at the end of the tunnel! :)
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10/17 It's a BOY!! :)
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Postby lizzen » Mon Oct 20, 2008 2:10 pm

Oh no! Zade's foot plate broke on Friday night! The plastic is stripped around the screw hole so the shoe won't stay in place and it was of course, the shoe for his clubbed foot. My orthotic place is awful at returning phone calls, does anyone know if you can order just a footplate or am I going to have to replace the whole system? Right now we've got it glued on!
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby stuckunderhere » Wed Dec 10, 2008 1:02 pm

Well, turns out, I think my LO does have some sort of foot issue afterall :(
One of his ankles has this bluish tinge to it (It looks like a hard bruise that just wont go away for the past 2 weeks) and his leg keeps shaking randomly when he's not even cold. I see my pedi next Tuesday so I will ask her about it. But this makes me think that even though we didnt end up with CF, he might have some problem. *sigh*

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See what I mean?
And I dunno if its just me, but his leg looks kinda crooked a bit too, no?
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Postby lizzen » Wed Dec 10, 2008 2:37 pm

Hey! I've been thinking about you since your little man was born. Congratulations, he's such a cutie!

Just based on the picture, it does look like he has some mild clubbing in his left foot which would account for why you think his leg looks a little off. Zade always had that bruised look, too, but I attributed it to the cast. The shaking is probably not related to any CF issue and just due to his still immature nervous system. Zade used to shake like that, too, and there were no neuro problems, it was just something he had to outgrow.

I'll post a pic of his feet and some other info later. Just getting over the stomach flu around here so everyone is sick and cranky!

Congrats again and KUP on what the doctor says!
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby stuckunderhere » Wed Dec 10, 2008 8:59 pm

Thank you :)
I will definitely update you on his pediatrician appt on Tuesday.
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Postby stuckunderhere » Tue Dec 16, 2008 11:38 am

We're back.
Well turns out the doctor thinks its just a birthmark although I'm still not too sure about that because who's ever seen a blue one? :P But she says his actual foot/leg looks okay. She says the position it has right now is probably just due to his positioning in the womb and it should eventually correct itself. So I'm happy! :)
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Postby stuckunderhere » Thu Mar 05, 2009 7:21 am

So, after 3 months, it still hasn't really corrected itself. We are off to see a specialist in a few weeks... *sigh*
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Postby lizzen » Thu Mar 05, 2009 8:08 am

Well, the good thing is that he's still not independently mobile so it's not going to impede anything! :D What's the name of the specialist you are seeing? You're in Canada, right? What province? I would really, really suggest you join the Yahoo group for clubfoot. The members there are so knowledgeable and undoubtedly there will be someone who has had experience with the doctor you plan to see. Or they can point you in the direction of a doctor close to you who is Ponseti certified. Especially now that he's a bit older, you really want to make sure he's got the right doctor. Clubfoot IS easy to treat, but if you get a doctor who doesn't know what they are doing they can make a bigger mess out of things.

The name of the group is nosurgery4clubfoot in yahoo groups.

http://health.groups.yahoo.com/group/no ... 4clubfoot/
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

:hb: Mommy to my three boys!!! :hb:

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Postby manynums » Fri Mar 06, 2009 11:08 am

stuckunderhere wrote:So, after 3 months, it still hasn't really corrected itself. We are off to see a specialist in a few weeks... *sigh*


Sorry about this...be diligent with your LO's care. Lizzen is right about the more harm and finding support. You want a Ponsetti-trained doc, IMHO.

I'll look forward to your update.
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Postby stuckunderhere » Sun Mar 29, 2009 6:00 am

manynums wrote:
stuckunderhere wrote:So, after 3 months, it still hasn't really corrected itself. We are off to see a specialist in a few weeks... *sigh*


Sorry about this...be diligent with your LO's care. Lizzen is right about the more harm and finding support. You want a Ponsetti-trained doc, IMHO.

I'll look forward to your update.


Oh I know I do. He is NOT going through all the surgeries that DF went through...

I'll have to check that yahoo group too. Thanks.
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