Dilated kidneys - x posted

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Postby hoping4another » Thu Jan 08, 2009 8:37 pm

Oh Jen,
I am so sorry that you have to be induced this early, but they will know what is best. I am sure that you are nervous, scared, but the sooner that they can ablate the valves, the better. It sounds like he is a good size.
I will be thinking about you and hoping for the best outcome.... Please KUP as soon as you are able.
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Postby jesscc » Fri Jan 09, 2009 2:09 pm

Jen, I am also sorry about you having to deliver so early, but they do know what is best, as you and your baby will be in my thoughts and prayers. Please do let us know your outcome. Best wishes for your birth!
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Postby jaybee25 » Sat Jan 10, 2009 2:37 am

Thanks everyone,

I have managed to calm down to a frenzy now! lol

I had my second steroid shot yesterday and ran about getting bags and everyone else organized!

Do you think they will ablate the valves asap even if he is early?

I will be updating trintyuk on the february boards because I am not sure when I will have access to the internet.

Thanks so much for all your thoughts and prayers.

Jen
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Postby jaybee25 » Sun Jan 18, 2009 10:34 am

hi everyone,

Sorry i have not posted sooner but things have been hectic.

Charlie was born on tuesday morning, weighing 7lb 5 oz. He started peeing immediately so they did not put a catheter in till later that day.

He will hopefully be having surgery tomorrow - a vesicostomy (? spelling).
The Surgeon feels he is too small to do the vales at the moment and plans to do them a 6 months.

Both his kidneys are "not normal" but at the moment all his bloods are showing that they seem to be working, filtering blood and making urine. He is on supplements of sodium bicarbonate and calcium. We are being told that it just a matter of getting the right balance of milk and supplements for the immediate future.

I will let you know how his surgery goes.

Jen
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Postby hoping4another » Mon Jan 19, 2009 3:33 pm

Jen-
That is great that he started peeing right away... definitely a good thing. It is also good that his kidney function tests were good..
How did the vesicostomy go?? I have been thinking about you and baby Charlie. Thank you for keeping us posted and please continue to do so when you have time.
I agree, I would love to see pics!
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Postby jaybee25 » Tue Jan 20, 2009 12:15 pm

hi

Charlie had his vesicostomy this morning. He is recovering well. He was really just sleeping for the rest of the day. Which I am quite pleased about, as I know he was not in pain.

I am having trouble posting pictures, hope this work.

http://s265.photobucket.com/albums/ii215/jayembee25/?action=view&current=DSC00070.jpg


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Postby hoping4another » Tue Jan 20, 2009 4:54 pm

I am glad that his surgery went well. He is such a sweet, handsome baby!!! Thanks for sharing, please continue to let us know how things are going.
He will continue to be in my prayers.
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Postby jesscc » Wed Jan 21, 2009 3:43 pm

I'm so glad everything is going well. I hope to hear more promising news on him soon!
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Postby lizzen » Thu Feb 12, 2009 11:11 am

Hey, ladies! I haven't stopped in here recently because basically I had no news to report. Zander is one month old today and such a sweetie pie! He had an US when he was a day old that showed his left kidney was still mildly dilated. He definitely has no problem peeing! He soaked the nurse and most of the exam room at his two week visit!!! But according to the pedi this particular problem wouldn't affect his ability to void anyway.

Today we went for a repeat US and still the left kidney is dilated. His right one measured 2x5 and his left measured 3x5.5 so I don't *think* that's a huge size difference. Anyway, his pedi said that if this US showed dilation he'd send him for a VCUG so I guess that's our next step.

The frustrating thing for me is that no one will tell me anything beyond the VCUG. Will he need to be on antibiotics to prevent an infection, does it alter his kidney function as far as processing things, is he going to need surgery? No one is telling me anything and I really hate being in the dark. I don't get the impression that this is a HUGE problem but it's hard to tell when no one is talking, KWIM?

And I have to say that although I consider myself to be fairly well-informed, these kidney issues have me a bit confused! Usually I understand everything the doctors tell me but when they discuss these kidney issues I find myself only understanding about half of it. They say the kidney is dilated but that the problem isn't with the kidney itself but the tube? I don't get it all but that's where we're at right now.
The cleaning and scrubbing will wait till tomorrow, For children grow up, as I've learned to my sorrow. So quiet down, cobwebs. Dust go to sleep. I'm rocking my baby and babies don't keep.

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Postby jesscc » Thu Feb 12, 2009 2:50 pm

Lizzen, that does sound really frustrating. I know how you feel because I felt I wasn't getting complete answers either when I was going through the dilation during my pregnancy. It is great to hear how well he's doing though!!! Please keep us posted and let us know when you get more information!
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Postby hoping4another » Fri Feb 13, 2009 9:06 pm

Lizzen: When will they do the VCUG? If if is only mildly dilated, that is not a huge deal. My friend had that with her daughter and they just had to follow up for a year. It usually resolves on its own. I am sure that the VCUG will give you more answers.
I know how you feel when you don't have all of the info. Our doc told us that we wouldn't know the whole picture until after the baby was born and after he had the VCUG. We were fortunate to have one right away but they did one immediately because Kian's situation was more severe.
I am thinking good thougts for you and hoping that all they have to do is just monitor it.
Most of the time, if the dilation is just contained to the renal pelvis, there is not kidney damage. Kian's dilation was throughout his kidney with lots of high pressure from the ureter and that is why his kidney was severely damaged. There are a lot of babies that just have the dilation in the renal pelvis.

Just an update on us.... Kian's surgery (to remove his right kidney and ureter) has been postponed. He was supposed to have surgery on Feb. 23rd, but his doctor had to go out of town for a family emergency. He will now have surgery on March 13th. I was disappointed, because I just wanted it to be over with. I know that this will at least give him a few more weeks to grow and get stronger.
He is doing well otherwise and is such a happy sweet baby. I am so lucky to have two wonderful boys!

*Lizzen* I forgot to mention CONGRATULATIONS! He is such a handsome little baby!!! What a precious boy, thanks for sharing!
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