Dilated kidneys - x posted

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Postby hoping4another » Fri Jul 25, 2008 2:21 pm

Well I had my u/s today and the kidneys are dilated to 10mm and 11mm. The right is worse than the left. The right kidney is "brighter" which means that he has more fluid inside his kidney chambers, but the kidney looks like it still has some good kidney tissue. The right ureter is still enormous and bent out of shape. The amniotic fluid was still good and the bladder appeared to be normal. The doctors here can't tell me a whole lot, but I will have to meet with the urologist again in Minneapolis in 4 weeks (along with another scan). It wasn't the news that I had hoped for, but I am trying to stay positive. The amniotic fluid is still good, which means that the kidneys are still functioning.
I am just praying that things get better at the next u/s.
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Postby hoping4another » Fri Jul 25, 2008 5:57 pm

Thank you. I hate to wish my pregnancy away, but I just hope that time passes quickly so that we can get more answers and get closer to delivery.
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Postby jesscc » Fri Jul 25, 2008 7:47 pm

Hoping - I am so sorry you didn't get more reassuring news. I know how that feels. I also know what you mean by wishing the pregnancy would complete safely so you can move on to finding some solutions. These are feelings I have all the time, especially since my last appointment. It is difficult to feel so "helpless", since there isn't anything you can do other than attend the appointments and continue to take good care of yourself.

I am glad to hear that the fluid is good and that the bladder looks normal. When you go for your next u/s will it be with the specialists who were more positive last time?

You and your LO are in my prayers as well. Again, as JT said, there are good prognoses for solutions after the baby is born, and it sound like the pregnancy is progressing well otherwise. Please keep us posted ok?
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Postby hoping4another » Sat Jul 26, 2008 7:29 am

Thanks Jesscc,
We will be going to the same docs in the cities as last time. I feel good that we are going to be in the best care possible... I just have so many questions about what will happen after he is born. I suppose that they will be able to answer that. His poor ureter is so big! If I could compare a normal ureter would be the size of a spaghetti noodle.. I suppose his would be comparable to the diameter of a finger ( a really bent up one). I hope that it doesn't cause him any pain. I just don't see how that could correct itself on it's own. Poor kid.... I just hope that his little kidneys maintain good function, like I said... one was brighter than the other.
I hope that the next few weeks fly so we can find out more on the little guy.
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Postby jesscc » Sun Jul 27, 2008 6:36 pm

Isn't it so hard not to worry like crazy? I just wish the pregnancy would hurry along up so I (we) could move on towards more information and solutions. Time seems to be moving at a snails pace here.

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Postby hoping4another » Mon Jul 28, 2008 12:46 pm

Well, the docs called me back from the U of Minn. and they got the results from the u/s that was done here.
Apparently, they feel that I need to deliver there so that the urologist can evaluate him after birth. He may have to have a procedure done after birth for his ureter.
The part that is hard, is that I am 7 hours away from Minneapolis. The nurse told me that they typically have out of towners come at about 36 weeks and they live in the cities until the baby is delivered. I don't know how I am going to be able to do that>>! I think that I will go insane! I would have to be away from my son and husband for that long? It just seems so crazy to me. I also went late with my son and I had to be induced. While I know that we will be in good hands, I just don't know how that would be good for my mental well-being at that time.
I know that we will deal with whatever we need to do, but I am just praying that things change drastically at the next u/s. We are supposed to go back to Minneapolis for another u/s on Aug 25th and then they will discuss "the plan".
I just really can't believe all of this.
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Postby jesscc » Tue Jul 29, 2008 10:56 pm

Oh Hoping - that is dramatic news. I would feel utterly overwhelmed! I imagine that the good part of this is immediate access to excellent and thorough care for your little guy, which from what I now understand can be really effective. But gosh, the idea of having to reside in that city away from your family would be really tough along with everything else. Is it possible for them to induce you, even possibly slightly early as they do with a situation like preeclamsia, so you could control the timing somewhat? Yes, let's hope things change for the better at the next u/s. Please keep us updated. I will be thinking of you.
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Postby hoping4another » Wed Jul 30, 2008 8:49 pm

Hello,
I think that the shock of this news has somewhat wore off for me and I am just accepting that this will be the best for the baby.
It didn't sound like they would want to induce me, although it was the nurse that I talked to. I am hoping that the doc would have different news or let me come down a little later.
We are fortunate, because I have family that I can stay with while I am there. DH has also been able to talk his boss in letting him work from a home office for a few weeks, so I think that will work for my son and him to come with also.
I think that it will be good for him to have the best care possible after he is born... I just hope that this all turns out okay for him.
I will keep you posted.
Jesscc- do you have any more u/s scheduled? I was visiting with an OBGYN who is a friend of family and he was telling me how common it is to see dilated kidneys. He said that he has seen it many many times in his practice and we just know about it more because of technology. Years ago, when they didn't have u/s to rely on, the baby may have had this and outgrown it by the time he/she was born or shortly thereafter. I just thought that was reasuring to hear. I know that in our scenario, we might be dealing with something a little different because of his ureter, but it was good info.
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Postby jesscc » Sun Aug 03, 2008 7:29 pm

Yes, I do have another u/s scheduled, in 3.5 weeks when I'll be about 34 weeks. I think it's August 28. I wish it were here already. Thank you for the reassuring words about dilated kidneys. I am really hoping, of course, that this resolves itself, as of course it would be the best scenario.

I know I say this every time I post, but it's the not knowing that's difficult right now.

Baby #2 due Oct. 6, 2008. 30 weeks, 6 days pregnant
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Postby jesscc » Wed Aug 06, 2008 8:13 pm

Hoping - How are you holding up? I hope you are doing ok and that your pregnancy continues to progress well despite the trouble LO is having. Good luck at your u/s on the 25th. Do you see your regular OB before then? Are they helpful?
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Postby hoping4another » Thu Aug 07, 2008 12:14 pm

I know what you mean about the not knowing part.... it is hard!
I am holding up very well this week. I have been super busy with DS and getting things ready for baby.
I am trying to look at it all in a whole new light... the delivery part anyway. I will get to have a nice little vaca from work at least until the baby is born.
I just hope that the little man is holding up in there. His right kidney really worries me.... but I just have to keep believing that as long as the amniotic fluid is good, that at least one of the kidneys is functioning properly.
I have another regular checkup with the OBGYN here on the 18th. He tries to be helpful, but I think that this is out of his realm of expertise. It seems so long until my u/s on the 25th......

How are you doing?
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Postby jesscc » Thu Aug 07, 2008 6:55 pm

About the same as you! Trying to stay positive and waiting waiting waiting. My OB tries to reassure me, but as I've said before, she's not full of information and always seems to be in a hurry. I have my regular appt. on the 21st and then the u/s the following week. I am really nervous for it.

I'm glad you can see it as a break from work, and it's true, you will be in really good hands at the hospital where you'll deliver. Your baby will have access to the best resources right away, and I know that's just the best thing for them. I will be delivering at our small country hospital which makes me nervous because I would like to be closer to better care. But they keep telling me they can't tell much until the baby is born in this case. Yikes. At least I really like my pediatrician.

Not very many people know how worried I am which makes the whole thing a little awkward. Perhaps I should start being more open about what's going on.
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