Has anyone ever had this...*Update*

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Has anyone ever had this...*Update*

Postby chetara » Sat Jan 10, 2009 2:56 pm

On the u/s they found a tiny white spot on my sons heart, in the left ventrical. They called it a calcium spot. Has anyone ever had this? If so what was your outcome?

So I went for the detailed U/S and the dr who came in afterwards told me he didnt even understand why I was sent there in the first place. The spot was smaller than the first time and he took all the other measurements and saw nothing that was abnormal. He said he sees these spots all the time now with the technology advances and has very rarely seen problems. I finally Got my quad screening results back and all was normal on that too. I am breathing a little better now as I am not trying to stress too much on it anymore. Thank you ladies for all the wonderful advice and support!!!! It meant so much to me!!
Last edited by chetara on Wed Jan 28, 2009 8:50 pm, edited 1 time in total.
Me (Jessie) - 27
Andy (DH) - 31
Jared (DS) - 7
Victor (DS) - 1
Samantha (DD) - 1

bfp 9DPO 9/29/08
10 DPO beta: 28
12 DPO beta: 80
18 DPO beta: 605

4/26/09: Victor born, 3lbs15oz, 3:25PM, 17.25"
4/26/09: Samantha born, 4lbs10oz, 3:26PM, 17.50"

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Postby ncgirl » Sat Jan 10, 2009 9:51 pm

My daughter had this....it's called an echogenic focus and I was terrified when I found out...I looked it up online and panicked even though my dr. said that they see it all the time and 99% of the time it is nothing. Katie was born perfect and healthy and had an echo after birth, and they said everything looked great...I know it's hard, but try not to worry...I didn't enjoy the second half of my pregnancy because of it, and it turned out to be nothing. Just let me know if you have any questions, and I will answer what I can from my experience. :)
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Postby chetara » Sun Jan 11, 2009 2:05 am

thank you for replying. I am trying not to freak out, but as mothers we do. When did they notice the spot for you? I have had several u/s and this is now the first they are seeing it. I do go this Fri for a higher u/s as I requested.
Me (Jessie) - 27
Andy (DH) - 31
Jared (DS) - 7
Victor (DS) - 1
Samantha (DD) - 1

bfp 9DPO 9/29/08
10 DPO beta: 28
12 DPO beta: 80
18 DPO beta: 605

4/26/09: Victor born, 3lbs15oz, 3:25PM, 17.25"
4/26/09: Samantha born, 4lbs10oz, 3:26PM, 17.50"

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Postby ncgirl » Sun Jan 11, 2009 7:56 am

I was 19 weeks....I requested a level 2 ultrasound after they found it, and when I went for that one a week later, it was still there, but everything else was perfect. They didn't even consider it anything abnormal since there were no other markers for anything else and the Dr. said they see it quite often and by itself it's usually nothing to worry about. Believe me, I know how hard it is not to worry...I'm the biggest worry wart ever, but knowing what I know now, I wouldn't have worried so much. A lot of times they will disappear on their own, and if they are still present at birth, they usually go away by the time the child is 5, and it doesn't cause any issues with their heart. I don't know if Katie's was still there after she was born because I didn't ask...They just told me that her echo looked great, so I just left it at that. I would google echogenic focus and read all of the info on it and that was probably the biggest mistake I made because most everything I read just made me panic more. (I would suggest not doing that) :oops: Although there was a message board I found that had TONS of women who had this spot on their babies, and when they would post saying their baby was born healthy and happy, it would give me some relief and hope. I would go there and read the replies every day during the second half of my pregnancy to help calm my nerves. A lot of times it's the u/s equipment that can cause it to look brighter (kinda like a camera flash), so that's why they like to recheck it because sometimes it's gone since it was never really there, and sometimes it is only a calcium spot and it just shows up brighter during normal deveopment. I wish they wouldn't even tell moms about this spot unless there are other markers with it, because there are SOOOO many times where it means NOTHING and it just makes us pregnant women crazy worrying. Let me know if you would like the link to that message board and I will find it again for you. It really helped me. :hugs:
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Postby chetara » Sun Jan 11, 2009 12:49 pm

I think I have stumbled upon the webpage you may be referring to. The one I was reading was like 29 pages long and out of all those ladies on there who posted there were like a very small small few who had a problem. I know that they said everything else was normal so far, I, like you am a major worry wart. I had been TTC for such a long time and it was such a surprise that I got pg, then a bigger surprise that it's twins. I am really hoping and praying that everything is ok. Did they offer you amnio? And if so, did you do it? I know I also did some statistical research and that did make me feel a whole lot better too. But still, the worry will be with me.
Me (Jessie) - 27
Andy (DH) - 31
Jared (DS) - 7
Victor (DS) - 1
Samantha (DD) - 1

bfp 9DPO 9/29/08
10 DPO beta: 28
12 DPO beta: 80
18 DPO beta: 605

4/26/09: Victor born, 3lbs15oz, 3:25PM, 17.25"
4/26/09: Samantha born, 4lbs10oz, 3:26PM, 17.50"

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Postby ncgirl » Sun Jan 11, 2009 12:56 pm

They didn't offer an amnio, and I wouldn't have done it since termination wasn't an option for me, plus the risk for miscarriage from the amnio was a deterrant for me as well....it's a small risk, but it was greater than my chances of having a problem due to the focus so I didn't request one either. I would have never forgiven myself if nothing was wrong and I miscarried just because I wanted to know. I mean, I wanted to know so that I could quit worrying, of course, but it was just a chance that I wasn't willing to take, plus, even if there was a problem, I wouldn't have done anything about it anyways...I would have still had the baby. So, it's really a personal decision about the amnio...My decision wasn't right for everyone. I totally know how you feel, and I wish I could do something to help your worry...it's not fun at all. I didn't have the triple screen done either, since it's not all that accurate, so I didn't have that to go off of, but if you had it done and it came back normal, then you can have extra assurance. :) I know it's so hard, but I do regret not enjoying my pregnancy more...I felt like it was robbed from me. Try to just push it to the back of your mind and know that 99% of the time, everything is just fine. Let me know if you have any other questions...I'll be more than happy to help, and keep us posted! Everything will be ok. :hugs:
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Postby mamalynn » Sun Jan 11, 2009 1:49 pm

my son had an echogenic foci or white spot on his heart as well. for him it was a soft marker for down syndrome. it was found in the u/s during our visit to the genetic specialist. because i had a high risk for carrying a down syndrome child, i opted for the amnio right then and there. although i had no intention of terminating, i had to have more information. he was diagnosed with trisomy 21 and about a week or so later a cardiologist confirmed the heart defect. i certainly do not want you to worry over this, but i know it is nearly impossible. i would suggest you discuss any and all options, feelings, concerns, etc. with your partner. i could never have made the decisions i made without the input of my husbands feelings too.

btw, pj had two surgeries to repair his defects in the summer of 2007. he is a healthy and happy two year old today! despite his disabilities, he continues to amaze me in every way possible.
michelle 41, dh 44,
pj 5 diagnosed with down syndrome & av canal defect of the heart (repaired 2007)
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Postby Kris08 » Sun Jan 11, 2009 3:00 pm

My last son had an echogenic focus on his heart as well. It was found by the perinatologist at about 18 weeks (I was high risk for other reasons). His comment was that he almost hated to mention it to moms because he knew how much they'd worry about it and it was almost always nothing. It's basically just a "bright spot" on the u/s and is not a problem in and of itself- the significance is that it's a soft marker for Down's. There are other soft markers as well- including an echo in other areas like the intestines, also something with the length of the pinky finger and thinkness of neck, can't remember the others. Since I was already with the peri, he looked for everything else then and there and there was nothing else. He calculated my odds for Downs based on age and everything else and the echo focus did raise my odds, but not significantly. I was offered an amnio, but the odds of risk from amnio were greater than odds of Downs, so we declined (wouldn't have changed our decision on anything, but it would be nice to be prepared). I was still in the time limit for the AFP, so I did do that and it came back normal. As much as I tried to ignore the finding, I'll admit, it did worry me up until his birth. My little guy was fine. Not a hint of any abnormality at all. He's 2 now and a perfectly healthy little boy.
Me- Krysta, 31 DH- Jeff, 33
DD-6 DS-4 DS-2
Here comes #4...
6w3d :hb: 115 4mm
8w3d :hb: 154 1.25cm
11w1d :hb: 176 4.6cm
14wk3d :hb: 161
16wk2d maybe a girl!
18wk3d :hb: 158 IT"S A GIRL!!!! Camille Faith!
37wk1d Welcome baby Cami!

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Postby mamalynn » Sun Jan 11, 2009 6:45 pm

for me it was different...i had the afp, i was turning 35 and pj also had a problem with his brain (although that turned out to be nothing.) you make a good point kris, in that you continued to worry throughout the entire pregnancy. i wouldn't say my pregnancy was worry free after the amnio, but at least i knew what was happening.
michelle 41, dh 44,
pj 5 diagnosed with down syndrome & av canal defect of the heart (repaired 2007)
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Postby chetara » Sun Jan 11, 2009 7:47 pm

Thanks ladies. Ive been trying not to worry about it. Especially since I wouldnt terminate my twins anyhow. I am still awaiting the triple screen results and should have some better answers from my dr. on mon as I doubt the tech will reveal any info to me on Fri when I go to the maternal fetal medicine for the U/S. Everything else has been fine so far, so Im trying not to worry so much. I will keep you posted on the results of their findings. Thanks again so much ladies!!!!
Me (Jessie) - 27
Andy (DH) - 31
Jared (DS) - 7
Victor (DS) - 1
Samantha (DD) - 1

bfp 9DPO 9/29/08
10 DPO beta: 28
12 DPO beta: 80
18 DPO beta: 605

4/26/09: Victor born, 3lbs15oz, 3:25PM, 17.25"
4/26/09: Samantha born, 4lbs10oz, 3:26PM, 17.50"

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Postby kpolumbo » Mon Jan 19, 2009 12:35 am

My son had an echogenic foci on his heart during his ultrasound as well. My AFP was completely normal and I was very low risk... I completely freaked out though and worried about it the rest of my pregnancy. I handled it a little better after a few weeks, but it was hard to put it out of my head. My son was born completely healthy and with no problems whatsoever in july. I had a follow up echocardiogram done too after he was born, just to be safe and his heart looked perfectly fine! My friend's DD was just born healthy in December after this same finding.

FYI - the foci are more rare on the left side of the heart than the right (I know this from all the tons of research and googling that I did). Of course that freaked me out more because my son's was on the left! But everything ended up fine like I said. I hope your AFP results come back good which should be a huge reassurance and that your appt. at the maternal fetal group goes well.
Me: Kathy, 28
DH: John, 31
DS: Jackson - born July 22, 2008

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Postby chetara » Fri Jan 30, 2009 9:09 pm

Just wanted to follow up to the update. Went for another U/S to measure the girl and everything looked perfect. They said other than doing cervix checks I shouldnt need to see the specialist any more. My quad test results were normal at 1:42,000. Thanks so much ladies for all the support and help over here!!!
Me (Jessie) - 27
Andy (DH) - 31
Jared (DS) - 7
Victor (DS) - 1
Samantha (DD) - 1

bfp 9DPO 9/29/08
10 DPO beta: 28
12 DPO beta: 80
18 DPO beta: 605

4/26/09: Victor born, 3lbs15oz, 3:25PM, 17.25"
4/26/09: Samantha born, 4lbs10oz, 3:26PM, 17.50"

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Postby mamalynn » Fri Jan 30, 2009 9:13 pm

that is great! so happy for you and thanks for the update! :D
michelle 41, dh 44,
pj 5 diagnosed with down syndrome & av canal defect of the heart (repaired 2007)
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Postby jennellis » Tue Apr 21, 2009 10:02 pm

glad it went well.
i just wanted to join in as my son had the same thing. and he was born perfect this past aug. I worried myself sick the rest of the pregnancy. i was 20 weeks when it showed up. my dr sent me to a fetal genetic dr to do further testing and measureing. i had not done the triple scren and it was to late. everything else looked fine. but i did not stop worring and he is fine.
kpolumbo- i remember talking to you about this last year. glad to see you and ds are doing great.
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