please pray for my baby

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please pray for my baby

Postby mrsjoh » Fri Jun 06, 2008 1:27 am

we were given news that my baby MIGHT have Hypoplastic Left Heart Syndrome. I don't understand how they can give you horrible news that can't be confirmed until 3 weeks from now when we go to a pedia cardiologist. We have had 6 losses prior, and just want a baby and a family of our own. We are nice people. It is going to be difficult to live thru 3 weeks of wondering if my baby is going to live or die. Please pray for us.
thank you
Jasper born Nov 25, 2008-Feb 23, 2010 www.jaspersheart.com
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Postby katiejo » Fri Jun 06, 2008 8:46 am

:praying: for you.
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Postby Lindsey » Fri Jun 06, 2008 11:38 am

I'll say a prayer. **HUGS** to you!!
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Postby aimsy » Fri Jun 06, 2008 2:59 pm

you will be in my prayers
DD1: 1-31-08
DD2: 8-13-10
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Postby avinubia » Tue Jun 10, 2008 10:01 am

I will pray for you and your baby.. :praying:
ME 28 DH 31 Jason 8 David 10

Christian Andrew
Born 12/16/08 at 2:15 pm
Weight 6 lbs 7.4oz
length 19 7/8

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Postby beccajoy » Tue Jun 10, 2008 10:10 am

You will definitely be in my prayers!
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Postby mrsjoh » Thu Jun 12, 2008 3:32 am

thank you ladies, our baby does had congenital heart disease, it is a single ventricle type of heart disease, he will more than likely need 3 open heart surgeries, we will find out more in the end of July, we are hoping it is not so severe that there is no hope, while chd is not permanantly fixable, surgery does prolong life,
so we will keep going forward
Jasper born Nov 25, 2008-Feb 23, 2010 www.jaspersheart.com
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Postby vixkat » Sun Jun 15, 2008 2:31 pm

sending you prayers and strength for your journey ahead x x x x
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Postby Laureenjellybean » Fri Jul 11, 2008 11:53 am

when you say your baby has congenital heart disease, is it still hypoplastic left heart? I know of three people with children with hypoplastic left heart. One has a daughter that is 3. She has been through MANY surgeries but is doing well. The other has a daughter that is 11 and will need one more and the last one didn't make it. If it is hypoplastic L. heart, there is still a chance with the right medical care. I'd recommend doing your research, even if it means going to a hospital somewhere not around you
Oh, by the way, I also have a friend that is 23 who was born with MULTIPLe congenital heart defects (heart on the wrong side, either an ASD or VSD, and valve issues) he has had MANY surgeries and is doing fairly well. Try to remain positive. HUGS in having to deal with this!
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