Useful Prem Links

For new mommies with preemie babies

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Useful Prem Links

Postby PixieB » Mon Nov 30, 2009 7:43 pm

(work in progress)

Survival Guide for Parents:
* You can never take too many photos, videos are awesome too (if you're allowed).
* Keep a journal, you will forget the details in time. Have your child's nurses write in it too.
* Don't be afraid to ask for help.
* You are your child's greatest advocate, be as involved in their care are you can, ask questions until you're sure you understand, find out all you can about their relevent conditions, and if something doesn't sound right -ask-.
* Treasure every milestone, it'll help you through the hiccups and trials.
* Give yourself permission to grieve.
* Your baby will forget their NICU time, their older siblings may not. It's a hard choice, don't make it alone.
* Talk to other parents in the NICU, they may become a life-long friend, in the least their path to parenting has been similar to your own, they'll likely understand where others have no experience to really 'get it'.
* Take time to be with your partner, you don't want to burn out. Keep in touch with life outside the NICU, to keep yourself sane.

Survival Guide for Friends and Family:
http://www.twoweekwait.com/preg/communi ... ic&t=61916

Grief associated with having a prem:

Ambiguous Loss, the joy/grief contradiction:
http://www.prematurity.org/baby/ambiguous.html

Coping with Prem Grief:
http://www.preemie-l.org/ALEXIs21.html

Expressing and Breastfeeding:
boosting supply through hand expressing and breast massage: NICU specific:
http://newborns.stanford.edu/Breastfeed ... ction.html

Exclusive pumping:
http://www.mother-2-mother.com/ExclusivePumping.htm

Increasing supply thread from bf'ing forum:
http://www.twoweekwait.com/preg/communi ... ic&t=93256

feeding tips for prems:
http://www.miraclebabyanastasia.com/Fee ... eemies.htm

Survival and Disability Rates:
http://www.twoweekwait.com/preg/communi ... opic&t=227

http://www.pediatrics.wisc.edu/patientc ... ating.html

When Can I Bring My Baby Home?
http://www.lilaussieprems.com.au/premat ... oing-home/

Useful Articles:
http://www.lilaussieprems.com.au/premat ... -articles/
Last edited by PixieB on Mon Nov 30, 2009 8:23 pm, edited 1 time in total.
Talia Grace: born Friday 13th of July, 2007, at 27w4d gestation, 700g/1.5lbs. Nursed for 4 years
and Violet Joy: born Thursday 19th, VBAC waterbirth, 39w2d, 3.35kg/7lbs 6oz, still a booby monster, just shared it with her big sister for 18 months.
http://pics.livejournal.com/littlebutto ... y/0000scpq
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Postby PixieB » Mon Nov 30, 2009 7:51 pm

Fun Stuff:
prem sized clothing:
http://www.earlybirdsbabywear.com

prem dolls (dolls made to the birth stats of your baby):
http://www.weebundles.com/
http://dollnetmarket.com/shop/product.p ... t=6&page=1

The BubBe book, a NICU journal for prems:
http://www.bubbornearly.com/
I highly recommend this one!!

Growth Charts:
Percentile calculator (australian):
http://www.ebabycentre.com.au/tools.htm

UK WHO growth charts:
http://www.rcpch.ac.uk/Research/UK-WHO-Growth-Charts

Foetal weight charts (28-42 weeks):
http://www.ob-ultrasound.net/weight.html


Developmental Milestones:
http://www.dbpeds.org/milestones.html
Last edited by PixieB on Wed Dec 02, 2009 12:00 am, edited 1 time in total.
Talia Grace: born Friday 13th of July, 2007, at 27w4d gestation, 700g/1.5lbs. Nursed for 4 years
and Violet Joy: born Thursday 19th, VBAC waterbirth, 39w2d, 3.35kg/7lbs 6oz, still a booby monster, just shared it with her big sister for 18 months.
http://pics.livejournal.com/littlebutto ... y/0000scpq
Image
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Postby Cindy » Tue Dec 01, 2009 6:05 am

http://www.medcalc.com/growth/

Awesome prem and term growth chart
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Postby aussieangel » Fri Aug 27, 2010 7:08 am

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Me 27 DH 31 DS 8 DD 5 and Mikey! 09/09/10
Diagnosed IU at 25wks. Nifedipine to prevent PTL. Betamethasone given at 26wks. Off Bed Rest at 29wks. Delivered 32.3wks because of PROM then CXS + Breech presentation = Emergency C-Section. NICU for 4 weeks.
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