Food Allergies

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Food Allergies

Postby nauticaboo » Mon Feb 07, 2011 12:10 pm

How many mamas have preemies with food allergies? What are their allergies? How were they diagnosed (allergy test, speculation, etc.)? What are their symptoms?
Last edited by nauticaboo on Tue Feb 08, 2011 8:50 am, edited 1 time in total.
Andrea & Kale - 28
DSS (7) and his half brother (4)

BFP after 32 cycles on 1st IUI with only 4 million post wash sperm count!

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Postby nauticaboo » Mon Feb 07, 2011 12:17 pm

We're pretty sure Desi has a a milk protein allergy. Her issues started back when she was in the NICU. Once she started taking feeds by mouth, they switched her HMF to formula (I was EP'ing) in preparation for her to go home. Well soon after, she started having watery stools, which changed to watery/mucousy stools, which changed to watery/mucousy/bloody stools. They ran all kinds of tests to make sure it wasn't a structural/bowel problem, and then they switched her to Elecare formula. We were finally able to switch to Alimentum (I was still pumping, but went completely dairy free), and didn't have any more issues.

Well recently she has been breaking out into rashes/hives/eczema, she has been constipated (this has been going on for quite some time, I just put two and two together recently), runny nose for months, and diaper rashes even if I change her the minute she poops. So we are thinking that it's probably the dairy allergy, and not just a prematurity related intolerance like we once thought. So she is back on the dairy elimination diet. They won't do allergy testing until she's two (she also has asthma, and they want to test her in the spring once the allergens appear).
Andrea & Kale - 28
DSS (7) and his half brother (4)

BFP after 32 cycles on 1st IUI with only 4 million post wash sperm count!

pPROM @ 25 weeks
Born on 4/3/09 @ 27 weeks (placental abruption) 2 lbs 5 oz, 14 in

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Postby MK13 » Mon Feb 07, 2011 12:46 pm

Ok, here I go:)

As I mentioned on the other thread, both my boys were born at 36w 1d ... they are very stubborn two little boys who go by their own schedule! I never had any signs of them coming early until the days I went into labor :). My doctor said that I'm just not meant to carry any longer and that I guess I have a "convection oven" :lol:

DS1 was born via emergency c-section at 5lbs and was my guinea pig baby ... poor thing! I've learned a lot since he was little :). I had an emergency c-section with him and was only able to BF while supplementing with formula the first 2-3 weeks ... since then on he was FF only and it took us a while to find a formula he'd handle ok. He had what I NOW know is bad reflux ... always spitting up, sometimes throwing up so we had to find the thickest formula we could the first couple of months until he outgrew that. Never occurred to me that 1. it was reflux and 2. he could have a dairy allergy! So that whole time I was feeding him dairy based formula and had no clue! He would never sleep longer than 2 hrs and tended to overfeed (now I know it felt good for him since it calmed down the reflux for a little bit). When he turned one I started reading up on dairy allergy, especially once I noticed he was getting red spots on his face after eating yogurt. He also had a bad eczema on his legs and face since birth. After reading all I could find, I quit giving him anything with dairy and eczema started clearing up and he started sleeping through the night. But struggled finding a replacement for his milk since he was pretty much addicted to drinking milk. Couldn't do Soy because he always threw up after any soy drink (and soy based formula). We ended up giving him Goat milk (he can handle about 8oz / day without having a skin reaction) and Almond milk (the best replacement in my opinion). Then at 13 months, I gave him his very first boiled egg for breakfast and he LOVED it ... in couple minutes he broke out in hives, his face got red spots and he started throwing up ... not once, not twice ... but about 10 times within the next hour (first the egg, then just clear liquid ... the stomach juices I guess) ...when his face started to swell, we headed down to the ER where they agreed with me that it was most likely allergy to eggs. So, we left the doctor's office with an epi-pen. I got him tested at 18 months (our doctor wouldn't do it any sooner). They did a blood test and confirmed dairy and egg protein allergy. He's been on a strict diet ever since. Especially when it comes to eggs. That one time was really scary! I just had him retested in January (almost 2.5 years old). This time using the skin scratch test and he's still seriously allergic to eggs but his dairy allergy is easing up. I was told I can start introducing dairy again if I wanted to and see how it goes. I figured if I can give him a yogurt once a day or every other day, I'll be happy ... he's handling it fine, the only reaction is his eczema gets worse within hours of having dairy but we can live with that :) ... the eggs are what makes it hard.

DS2 was pretty much refusing to eat at the hospital. We finally forced him some formula so they'd let us go home. He was born at 6lbs 2oz and went home in 48hrs at 5.5lbs. I was determined to BF him if I could but I didn't have enough milk so was able to do about 50/50 BM and Formula the first couple of weeks. He wasn't gaining almost any weight at all the first 4 weeks and was always crying and screaming at night, hardly sleeping at all so I knew something was wrong. He wasn't spitting up but I could hear the stomach juices coming up so once again I did all the reading and figured it could be silent reflux. I told our family doctor and she agreed and put him on Zantac. It helped a ton but he still wasn't gaining that much and still was in pain at night. So I went completely dairy free and started with different formulas, including hyperallergenic ones (Neutramigen, Alimentum, etc.) and it still didn't help. Our doctor sent us (when DS2 was 6 weeks old) to Children's Milwaukee hospital to see a GI specialist. By then he started gaining some weight so they didn't want to do any invasive testing (thankfully) and put him on Neocate formula and prescribed Prevacid instead of Zantac. ... neither of those helped. It actually made things worse. I went back to Zantac and found out the only formula he could handle well was Alimentum RTF (ready-to-feed). It turns out, that is the only formula that doesn't have corn / corn syrup in it and thus I suspected he was allergic to corn syrup. The GI specialist laughed into my face (what do I know, I'm just a mom, right?) and said he's never heard of a child being allergic to corn in the formula. We stayed with Alimentum RTF and Zantac and things slowly improved. He just got tested at 10 months and he does have a confirmed allergy to dairy and corn (thank you very much!) but fortunately only moderate, though the results are inconclusive because he's still on Zantac which can alter the results. But it's not serious and that's what counts! I've been slowly transitioning him form Alimentum RTF to Similac Sensitive and he's handling it quite well. Only issue we have is he's almost 11 months and won't sleep longer than 3hrs or so and even less at night. He keeps waking up with gas pain so there's still something in all these formulas that's bothering him. I stopped BF about a month ago when he decided to self-wean.
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DH 40
DSS 18
DS August 15, 2008 ... 3 weeks early
DS2 March 15, 2010 ... 3 weeks early
baby#3 ... edd 12/21/12 ... u/s at 12 weeks showed no heartbeat ... D&C at 13 weeks 6/14/12

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Postby nauticaboo » Mon Feb 07, 2011 1:01 pm

After you took dairy out of DS1's diet, about how long did it take for his eczema to clear up, if you remember?
Andrea & Kale - 28
DSS (7) and his half brother (4)

BFP after 32 cycles on 1st IUI with only 4 million post wash sperm count!

pPROM @ 25 weeks
Born on 4/3/09 @ 27 weeks (placental abruption) 2 lbs 5 oz, 14 in

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Postby MK13 » Mon Feb 07, 2011 1:06 pm

nauticaboo wrote:We're pretty sure Desi has a a milk protein allergy. Her issues started back when she was in the NICU. Once she started taking feeds by mouth, they switched her HMF to formula (I was EP'ing) in preparation for her to go home. Well soon after, she started having watery stools, which changed to watery/mucousy stools, which changed to watery/mucousy/bloody stools. They ran all kinds of tests to make sure it wasn't a structural/bowel problem, and then they switched her to Elecare formula. We were finally able to switch to Alimentum (I was still pumping, but went completely dairy free), and didn't have any more issues.

Well recently she has been breaking out into rashes/hives/eczema, she has been constipated (this has been going on for quite some time, I just put two and two together recently), runny nose for months, and diaper rashes even if I change her the minute she poops. So we are thinking that it's probably the dairy allergy, and not just a prematurity related intolerance like we once thought. So she is back on the dairy elimination diet. They won't do allergy testing until she's two (she also has asthma, and they want to test her in the spring once the allergens appear).


wow, they won't test her until she's two? As I wrote, with Nick they wouldn't do it until he was 18 months ...that's when our family doctor sent us for the blood test. But with Peter I wanted to do it ASAP and I got a referral to Pedi allergist and their office had no problems doing the scratch test right there and then at 10 months.

Both boys used to have runny poop ... Nick didn't have his first solid stool until he was about 20 months when he was truly 100% dairy and egg free. Peter had a lot of mucus in it the first couple of months, fortunately no blood. He's no starting more solid foods and it's getting more peanut buttery. So I think we're on the right track. There was no more mucus couple weeks after cutting out the dairy.
ME 35
DH 40
DSS 18
DS August 15, 2008 ... 3 weeks early
DS2 March 15, 2010 ... 3 weeks early
baby#3 ... edd 12/21/12 ... u/s at 12 weeks showed no heartbeat ... D&C at 13 weeks 6/14/12

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Postby nauticaboo » Mon Feb 07, 2011 1:21 pm

NOBODY wants to test her until she's 2. She sees a pulmonologist (who works in the allergy/immunology division), and her primary doc.

Her primary doc is not big on doing "unecessary" or painful procedures, and she was the one who told us to do the elimination diet - I guess with the thought that if it works, we can assume it's dairy without having to go through all of the testing. Her pulmonologist was the first one who saw the rash (we happened to have an appointment that day), and even though asthma, allergies, and eczema go hand-in-hand, she told me that it wasn't eczema or an alergic reaction and to see her pedi (who was the one who said right away it was eczema). In regards to her asthma issues, she said that allergy tests aren't really reliable until their second year of life because they really need 2 years of exposure to 'develop' an allergy, so we plan on doing allergy testing in April, when she turns 2 and when the seasonal pollens are out (we think her asthma issues are seasonal allergy related). So now I am going to make sure they test for food allergies too.
Andrea & Kale - 28
DSS (7) and his half brother (4)

BFP after 32 cycles on 1st IUI with only 4 million post wash sperm count!

pPROM @ 25 weeks
Born on 4/3/09 @ 27 weeks (placental abruption) 2 lbs 5 oz, 14 in

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Postby MK13 » Mon Feb 07, 2011 7:10 pm

nauticaboo wrote:After you took dairy out of DS1's diet, about how long did it take for his eczema to clear up, if you remember?


it took couple weeks to see a real difference ... on the other hand, it only takes a day or two for his eczema to come back as soon as I give him some dairy. Ugh! Dairy can stay in their system even for 2-3 weeks so that's why it takes a while for the skin to clear up I guess.
ME 35
DH 40
DSS 18
DS August 15, 2008 ... 3 weeks early
DS2 March 15, 2010 ... 3 weeks early
baby#3 ... edd 12/21/12 ... u/s at 12 weeks showed no heartbeat ... D&C at 13 weeks 6/14/12

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Postby MK13 » Mon Feb 07, 2011 7:15 pm

nauticaboo wrote:NOBODY wants to test her until she's 2. She sees a pulmonologist (who works in the allergy/immunology division), and her primary doc.

Her primary doc is not big on doing "unecessary" or painful procedures, and she was the one who told us to do the elimination diet - I guess with the thought that if it works, we can assume it's dairy without having to go through all of the testing. Her pulmonologist was the first one who saw the rash (we happened to have an appointment that day), and even though asthma, allergies, and eczema go hand-in-hand, she told me that it wasn't eczema or an alergic reaction and to see her pedi (who was the one who said right away it was eczema). In regards to her asthma issues, she said that allergy tests aren't really reliable until their second year of life because they really need 2 years of exposure to 'develop' an allergy, so we plan on doing allergy testing in April, when she turns 2 and when the seasonal pollens are out (we think her asthma issues are seasonal allergy related). So now I am going to make sure they test for food allergies too.


I'm surprised they wouldn't test before 2 :(. I know they don't like to do it because a lot of kids will test allergic early on and will outgrow the allergies by the time they get tested at 2 or later. Having my personal experience with Nick's egg and dairy allergies, I wanted to have Peter tested ASAP so we'd know what we need to avoid ... and also, I didn't want to put both boys on too restrictive diet just to find out later that it wasn't at all necessary.

The skin scratch test didn't seem painful at all. They did it on their backs so they couldn't scratch it and it only seemed a little uncomfortable for the boys ... if at all ... when they put it on. They had this little tool that had several "endings" and the individual allergens were at those ends and they just put it on their backs and put a little pressure and moved it around a tiny bit just to scratch the top skin a bit. I imagined they were actually going to REALLY scratch them and it would hurt but it was nothing.
ME 35
DH 40
DSS 18
DS August 15, 2008 ... 3 weeks early
DS2 March 15, 2010 ... 3 weeks early
baby#3 ... edd 12/21/12 ... u/s at 12 weeks showed no heartbeat ... D&C at 13 weeks 6/14/12

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