Not sure....?

Support for anyone who has been diagnosed with endometriosis, or thinks they may have endo.

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Not sure....?

Postby hjh0221 » Sun Jul 26, 2015 7:08 pm

So, I've been stalking this entire website for the past 2 months while TTC and recently went to my gyno for a visit to discuss family planning and to have my annual. Before the visit they kept asking me questions as it related to painful periods etc.

I mean...who doesn't have painful periods am I right? I am just wondering...what is this pain?
I will not lie...a few times a year I will get TERRIBLE cramps but my periods are regular length, they are average 26-28 day cycle. So I didn't think anything of them asking me that. I don't have pain during sex.

Well..during the visit the dr indicated she felt some "firm tissue" and said she wasn't worried about it if I wasn't having painful sex associated with it. Naturally she has me freaking out that I have endometriosis and I am actually kind of upset because she didn't elaborate too much on it. She told me she wanted to check for progesterone levels to make sure I am ovulating and asked me to use ovulation kits. Nice..but I need more answers about this firm tissue.

Is some firm tissue normal? Is it always related to endo? Maybe I should go see someone else...

also i know it's only been two months...but i don't want to find out down the line that this could have been avoided if i found out i had endo and got the proper things in place to assist with treating it...which is why i ask!
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Re: Not sure....?

Postby Tina03 » Tue Aug 11, 2015 3:37 am

Endo is hard to diagnose without a laparoscopy where they look at it directly. A lot women think that period pain is normal but it isn't. Your period shouldnt be painful and easily bearable. If the pain gets so bad that you have to be bed bound, have to take pain killers or it's that strong it bothers/interuppts you while trying to work or do housework it's not normal. My pain would extend into my thighs and make me take pain killers. I could hardly work the first 2 days or stand up for a long time. It got much better after the operation and now i follow an endo diet and i have manageable pain without taking pain killers. Some women have very little endometriose and huge pain, some women have endo all over and feel barely anything. If you have endometriose on your ovaries you will see cysts that won't disappear. They are blood filled and every period adds more blood to them. A doctor can only guess it might be endo but you will never know for sure without a lap procedure. Endo can have a small to great impact on fertility depending where the endo parts sit. I also have pretty normal cycles even with endo. So that's not an indication for it and i also don't have pain during sex. It all depends where the endo is. I guess with firm tissue he means scars? That can be from endo as it causes scarring, adhesions and often pain during your period in the places its located (tubes, bowl, ovaries, uterus, bladder etc.). I also had painful bowl movements during my period cause of adhesions there. But as i said you won't know unless they look at it. You can TTC for now and see what happens. If you try a year without success your doctor will/should recommend you to a fertility specialist and you eventually will be checked for it. For me it was the cysts (wouldnt disappear and got bigger) on my ovaries that caused me to have a small operation and gave me the diagnosis of endo. But again neither you nor you doctor will know for sure without the lap procedure! It can only be assumed.
2012 diagnosed with endometriosis, surgery/lap, diagnosed with subseptate uterus 2017...TTC since almost 3 years before first BFP in 2015
2015 August 4 - MC identical twins at 7 w, BFP @ 13dpo - squinter BFP @ 12 dpo, Betas: 152, 310, 1982
2016 Oct 10 - MC at 5-6 weeks, BFP @ 9dpo, Beta @ 4w 199

2016 Dec 30 - BFP @ 9dpo > EDD Sept 13, 2017 It's a BOY (av. BPM 130)

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Re: Not sure....?

Postby @whenmytruerainbow » Thu Apr 19, 2018 6:01 am

Poor thing you are, honey! Endo hurts much, I know. Moreover lapos are aimed to help with endo but not in my particular case it seems. I''ve done two and felt relieved for some time. Though this didn't help much with improving fertility as my eggs turned out to be of extremelly poor quality. Currently diagnosed with endo & pcos a 40 years young lady seeking help with donor egg ivf. Hope things are getting better for you, hun. Keep posting.
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Re: Not sure....?

Postby Xenia » Fri Mar 08, 2019 10:28 am

Endo can be so painful. I can understand that, honey. It's good to see you're motivated. Please, keep the faith. You can push through this, I'm sure. I want to send you lots of love, baby dust, and best wishes. Keep us posted on how it's going!
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Re: Not sure....?

Postby hannahdavid » Fri Mar 08, 2019 3:19 pm

I hope things go well for you. Do get a second opinion on this. This will really clear things out for you. Good luck to you. I am in the middle of an IVF process. I was diagnosed with low AMH. Hoping the process works out for us. Sending baby dust your way.
-Low AMH and High FSH
-Poor Ovarian Reserve
-5 IUIs (failed)
-1 IVF (failed)
Life is a total mess
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Re: Not sure....?

Postby EstrellaS » Sat Mar 09, 2019 11:47 pm

It's really important to get a second opinion. You should trust your doctor but it's better to check in with another. Endo can be a little painful. I can understand how it must be. Don't give up, and keep trying. You can get through this time! My prayers are with you, honey.
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